News

Posted Saturday 25th March 2017

Dear Member of Rare Disease UK We need your help. On Tuesday, MPs will meet in Parliament to debate the implementation of the UK... Read More

Posted Saturday 25th March 2017
Posted Wednesday 22nd March 2017
Posted Tuesday 14th March 2017
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Posted Thursday 23rd February 2017
Posted Thursday 26th January 2017

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.