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Welcome to the NSPKU web site.Please follow the links at the side and the top of these pages to navigate around the web site or use the quick links below to find the most popular items.
Quick links
What is the National Society for Phenylketonuria (NSPKU)?The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see history. The NSPKU actively promotes the care and treatment of PKUs and works closely with medical professionals in the UK. It organises conferences and others throughout the UK, publishes a wide range of publications (including food lists) for parents, PKUs and medical professionals. Events - the NSPKU organises conferences and study days. Local support groups also hold study days and other events. The NSPKU also sponsors medical research into PKU. If you are a new parent of a baby that has just been diagnosed with PKU, we suggest that you follow the link to the What is PKU page before exploring the rest of the site.
What's New?
Please NoteThe treatment of PKU varies for each individual. No patient should alter their own treatment as a result of anything written in this web site without first consulting their doctor or dietitian. The NSPKU cannot be held responsible for the content of any external links. The content of this web site are NSPKU copyright. If you wish to reproduce anything from this site, please read our copyright notice. This site contains a few photographs mainly of past events. If you appear in one of these and object, please contact the webmaster advising which picture you would like removed. Please contact the webmaster if you find any errors or faulty links.
Contact Information
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Send mail to
webmaster@nspku.org with
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