News

Posted Tuesday 15th May 2018

We want to find out where there are problems in the prescribing system for people with PKU. Please report your problems... Read More

Posted Monday 9th April 2018
Posted Friday 23rd March 2018
Event
Posted Friday 4th May 2018
Event
Posted Wednesday 11th April 2018

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.