Posted Tuesday 19th June 2018

Access to treatment, support and innovative new medicines for phenylketonuria patients will be debated in the House of Commons on... Read More

Posted Thursday 21st June 2018
Posted Friday 8th June 2018
Posted Tuesday 15th May 2018

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.