Posted Tuesday 8th August 2017

Family wins High Court challenge over drug. A summary of the case, the result, the reasons for the court's decision and the... Read More

Posted Wednesday 5th July 2017
Posted Monday 3rd July 2017
Posted Thursday 10th August 2017
Posted Friday 7th July 2017
Posted Monday 8th May 2017

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.