News

Posted Saturday 11th August 2018

The NSPKU have recently been informed by NHS England that it will develop a policy for using Kuvan (sapropterin) with the intention that... Read More

Posted Tuesday 11th September 2018
Posted Tuesday 15th May 2018
Event
Posted Friday 7th September 2018
Posted Monday 3rd September 2018

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.