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Posted Friday 19th April 2019

On 16 April 2019 the BBC broadcast an investigation into certain aspects of BioMarin Pharmaceutical’s behaviour in relation to the... Read More

Posted Thursday 4th April 2019
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Posted Wednesday 13th March 2019
Posted Friday 15th February 2019
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Posted Tuesday 8th January 2019

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.