Posted Thursday 26th January 2017

URGENT - Do you have anything to say about a Specialist Metabolic service potentially leaving the hospital and going into... Read More

Posted Tuesday 10th January 2017
Posted Monday 9th January 2017
Posted Monday 9th January 2017
Posted Thursday 5th January 2017
Posted Thursday 8th December 2016

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.