Posted Friday 24th May 2019

On Sunday 30th June at 11am several volunteer led walks across the UK are being planned to mark International PKU Day 2019. We will be... Read More

Posted Tuesday 21st May 2019
Posted Tuesday 21st May 2019
Posted Tuesday 30th April 2019
Posted Monday 13th May 2019

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.