Posted Saturday 11th January 2020

Louise Jones and her sister were both diagnosed with PKU at birth via the heel prick test and have grown up with the restricted low... Read More

Posted Monday 6th January 2020
Posted Tuesday 29th October 2019
Posted Saturday 26th October 2019
Posted Tuesday 5th November 2019
Posted Tuesday 29th October 2019

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.