News

Posted Thursday 9th July 2015

NSPKU Statement on NHS England decision - Kuvan / BH4 / Sapropterin Many of you may be aware that NHS England has been considering a... Read More

Event
Posted Wednesday 8th July 2015
Posted Monday 15th June 2015
Event
Posted Wednesday 6th May 2015
Posted Tuesday 14th April 2015
Event
Posted Tuesday 14th April 2015

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.