News

Posted Tuesday 14th April 2015

NHS England is currently considering a policy for the use of BH4 in children with PKU. BH4 is a chemical “helper” that... Read More

Event
Posted Tuesday 14th April 2015
Event
Posted Friday 27th March 2015
Posted Wednesday 4th March 2015
Posted Monday 2nd March 2015

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.