News

The Complete European Guidelines on Phenylketonuria: Diagnosis and Treatment
Posted Monday 16th October 2017

Please use this link to access The Complete European Guidelines on Phenylketonuria:... Read More
Event
Great South Run 2017
Posted Wednesday 11th October 2017
Event
Saigon to Angkor Wat Bike Ride
Posted Monday 9th October 2017
General
Individual Funding Requests for Kuvan (BH4) Treatment
Posted Friday 29th September 2017
General
NHS will fund drug treatment after legal battle
Posted Friday 29th September 2017
General
PKU Funding Battle
Posted Tuesday 8th August 2017

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Publications

Management of PKU
The Child with PKU
News & Views 151
Dietary Information

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.