Posted Friday 15th February 2019

The NSPKU has communicated concerns for disrupted supplies of prescribable products for the PKU community after the planned date for the... Read More

Posted Tuesday 8th January 2019
Posted Wednesday 30th January 2019
Posted Tuesday 15th May 2018
Posted Friday 25th January 2019

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.