Posted Thursday 9th November 2017

What is this survey for? We would like you to complete a survey about living with PKU. Responses will be used in support of NHS... Read More

Posted Monday 13th November 2017
Posted Wednesday 11th October 2017
Posted Monday 9th October 2017

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.