Posted Friday 30th August 2019

The NSPKU have been reviewing the preparations being made by government for the possibility of a “no-deal” Brexit to... Read More

Posted Thursday 18th July 2019
Posted Monday 1st July 2019
Posted Monday 1st July 2019
Posted Tuesday 30th April 2019

New Parent?

If your baby has just been diagnosed with PKU, we suggest that you read the What is PKU and Frequently Asked Question pages before exploring the rest of the site.

What is the NSPKU?

The National Society for Phenylketonuria exists to help and support people with PKU and their families. Read More

What is PKU?

Phenylketonuria is a rare inherited condition which can be treated with a low protein diet.Read More

Please Note

The treatment of PKU varies for each individual. No patient should alter their treatment as a result of anything written on this or any site without first consulting their doctor or dietitian.