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Welcome to the NSPKU web site.Please follow the links at the side and the top of these pages to navigate around the web site or use the quick links below to find the most popular items.
Quick links
What is the National Society for Phenylketonuria (NSPKU)?The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see history. The NSPKU actively promotes the care and treatment for those with PKU and works closely with medical professionals in the UK. It organises conferences and others throughout the UK, publishes a wide range of publications (including food lists) for parents, those with PKU and medical professionals. Events - the NSPKU organises conferences and study days. Local support groups also hold study days and other events. The NSPKU also sponsors medical research into PKU. If you are a new parent of a baby that has just been diagnosed with PKU, we suggest that you follow the link to the What is PKU page before exploring the rest of the site.
Conferences in 2012We are holding 2 conferences in 2012. The NSPKU will be hosting the European conference in October, more details of which will be published in future editions of News and Views. Before then we are holding a mini conference on Saturday 18th February at the Hilton Hotel Northampton. This will be an all day event with the option to stay over the Friday night before for those who have to travel. We return to the Hilton Northampton which is a great venue for meeting each other for a full day’s programme of talks. It will run from 10am until 4pm with lunch including full PKU menu. The cost is:Saturday only £38 if booked before 18th January 2012 £45 if booked after that date. Children aged 5-16 £25 Children aged under 5 free Friday night and Saturday £95 per person if sharing, additional £10 single room supplement. Children aged 5-16 £25 if sharing Children aged under 5 free Adults with PKU will be half the above rates, children with PKU will be free. Friday night includes evening dinner, bed and breakfast however a limited PKU menu will be available for those meals. Rooms for Saturday night have been reserved however for any bookings after 18th January, accommodation cannot be guaranteed. A Crèche will be provided during the sessions however places annot be guaranteed if booked after 18th January. To book please ring Nicola Felton at the Hilton Hotel 01604 707043 or email nicola.felton@hilton.com Do not send credit/debit card details by email but supply a phone number or postal address and Nicola will contact you for them. For more details contact David Stening chair@nspku.org What's New?
Please NoteThe treatment of PKU varies for each individual. No patient should alter their own treatment as a result of anything written in this web site without first consulting their doctor or dietitian. The NSPKU cannot be held responsible for the content of any external links. The content of this web site are NSPKU copyright. If you wish to reproduce anything from this site, please read our copyright notice. This site contains a few photographs mainly of past events. If you appear in one of these and object, please contact the webmaster advising which picture you would like removed. Please contact the webmaster if you find any errors or faulty links.
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