LES MEILLEURS SITES SUR LA PCU ( PHENYLCETONURIE ) par Pierre Maurel (France)

PAYS  COUNTRY

ADRESSE DU SITE WEB ADRESS WEBSITE

WEBMESTRE    WEBMASTER  

 SUJET    SUBJECT

AMERIQUES  AMERICAS

ARGENTINE

http://www.pku.org.ar/
Bienvenido a la página web Argentina de FENILCETONURIA

ARGENTINE

http://www.telenocheinvestiga.com/notas/01-11-00/clasico/nota2.asp
"Telenoche Investiga. El programa" de María Laura Santillán et Juan Miceli

ARGENTINE

http://www.medynet.com/usuarios/PrevInfad/Hipotiroidismo.htm
José Galbe Sánchez-Ventura

BRESIL

http://www.afeh.org.br/
AFEH-PR : Associaçao dos fenilcetonùricos e homocistinùric. do Parana

BRESIL

http://www.fenilcetonuria.com.br/

Site de Harim e Claudia Vicente de Souza parents de Guilherme PCU

BRESIL

http://www.nib.unicamp.br/fenilbrasil/

http://www.nib.unicamp.br/fenilbrasil/vocepku.htm

Associação de Pais e Amigos de Portadores de Fenilcetonúria do Estado de São Paulo (APAF)

BRESIL

http://www.vittafix.com.br/

Empresa alimentícia voltada totalmente para produtos de dietas especiais, em particular, fenilcetonúria

CANADA Alberta

http://communities.msn.ca/PKUworld

http://groups.msn.com/PKUworld
Ciaara Christante mère de Zackery PCU classique 2 ans½ Edmonton

c_christante@hotmail.com or czchristante@shaw.ca

Canada Col. Britan.

http://www3.telus.net/webeyond/mcleans/

Site perso d’Andrew McLean, PCU 32 ans Canada Colombie-Britann.

Canada Col. Britan.

www.pkuadults.com
Andrew McLean 32ans PCU de Surrey (Colombie Britannique Canada)

CANADA Ontario

http://www.sickkids.on.ca/kids/kidlink/
The Hospital for Sick Children Toronto
CANADA Ontario

http://www.geocities.com/tcbpku/
Global Pku Portal de Maria Jouikova PCU 20ans Ryerson Polyetchnique Université Toronto

Canada Quebec

http://metabolique.com/
AQMMR

CANADA

http://www.csmd.ca/
The Canadian Society for Metabolic Disease

CANADA

http://ww2.mcgill.ca/pahdb/handout/handout.htm
Hyperphenylalaninemia (PKU) Resource Booklet for Families

CANADA

http://www.pahdb.mcgill.ca/
Informations sur les MUTATIONS du GENE de la Phenylalanine Hydroxylase

CANADA

http://www.nald.ca/CLR/nowiknow/page156.htm

My Story About PKU (Phenylketonuria) by Julie McMullin

CANADA

http://www.genetests.org/query?dz=pku
Shannon Ryan; Montreal Children's Hospital
Charles R Scriver, MD; McGill University

CANADA

http://www3.sympatico.ca/tammy_roger/Jennastory.htm

http://www3.sympatico.ca/tammy_roger/index.htm

MCAD:  http://www.emedicine.com/ped/topic1392.htm
Tammy & Roger Clark : « Jenna Florence Clark »

MCAD: Medium-Chain Acyl-CoA Dehydrogenase Deficiency

CHILI- CHILE

http://diagnostico.canal13.cl/cgi-bin/link.exe/Faqs/Alimentacion
¿Qué es fenilcetonuria? : Dra. Verónica Cornejo, Coordinadora Técnica Programa Fenilcetonuria Unidad de Genética y Enfermedades Metabólicas Instituto de Nutrición y Tecnologia de los Alimentos.

CHILI- CHILE

http://www.hsmq.cl/organigr/pku_fen.htm

http://www.hsmq.cl/organigr/pediatra.htm#Programas%20Especiales
Hospital San Martín de Quillota

CHILI- CHILE

http://www.sociedadmedicallanquihue.cl/neonatologia/programasneonatales/indicefenilhipotiroidismo.htm

PROGRAMAS DE BUSQUEDA MASIVA  DE FENILQUETONURIA

HOSPITAL PUERTO MONTT

MEXIQUE

http://www.salud.edu.mx/fenilcet.shtml
Instituto Nacional de la Nutrición Salvador Zubirán : Información elaborada por: Dr. Osvaldo Mutchinick B. Departamento de Genética

MEXIQUE

http://www.imbiomed.com.mx/Innsz/Nnv53n6/espanol/Wnn016-12.html
Pearl S. Buck y la fenilcetonuria

MEXIQUE

http://www.medweb.com.mx/fenilcetonuria.tpl
Medi Web

USA-California

http://home.san.rr.com/brenneises/
Bob et Ally Brenneise parents :Tyler, autisme cpku diagn. tardif et Stephen, Syndr.Asperger

USA California

USA Massachusets

http://www.pkuparents.org/

http://www.pkuparents.org/news_page.htm
The PKU Parents of California Website Présidente : Mary Mercurio

LOW PROTEIN EASTER CANDY 2003 de John and Dianne Sullivan

USA-Arizona

http://www.medhelp.org/lib/pku.htm

St Joseph's Medical Center Phoenix

USA California

http://www.pkunetwork.org/

CPN  Chidren’s Pku Network

USA-Connecticut

http://www.canr.uconn.edu/nusci/outrch/specneed.html
CHILDREN WITH SPECIAL NEEDS

USA Florida

http://home1.gte.net/magol/

http://mysite.verizon.net/magol/index.htm
Marsha Magol de Tampa (Floride), mère de Jeffrey PCU 13 ans

USA-Georgia

http://www.emory.edu/WHSC/HSNEWS/releases/june02/metabolic_camp.html
The Metabolic Camp at Emory University

USA Hawai

http://www.ess.sunysb.edu/tracy/penpals.html
WebSite du Docteur Tracy beck Pcu cl. 29 ans Astronome Hilo, Hawaï

USA Illinois

http://www.pkuil.org/       http://www.pkuil.org/understand.htm
Organisation PCU de l’Illinois

USA-Louisiane

http://www.lsuhsc.edu/no/centers/genetics/hereditaryhealing/article_pregnancy_PKU.htm

Hereditary Healing  A Public Service of The Center for Acadiana Genetics and Hereditary Health Care (CAGHHC)

USA Massachusets

http://www.pku-allieddisorders.org/

National Coalition of Pku and Allied Disorders de Trish Mullaley

USA-Michigan

http://www.michigan-pku.org/

Website of Sandy La Prad mom to Bethany cpku

USA Minnesota

http://www.peds.umn.edu/pku/

A Place of Our Own University Minnesota Pku Prog.et Pku Foundation

USA-Montana

http://www.savebabies.org/     http://www.savebabies.org/states/montana.htm

http://www.savebabies.org/states/montana.htm

http://www.dphhs.state.mt.us/hpsd/pubheal/healsafe/famheal/newborn/
Save Babies Through Screening
and Newborn Screening in Montana

USA-Pku Nebraska

http://www.hhs.state.ne.us/nsp/Newborn4.htm

http://www.hhs.state.ne.us/nsp/pmpku.htm

The Nebraska Department of Health & Human Services has contracted with the University of Nebraska Medical Center in Omaha (402) 559-7350 to provide formula, and medical, nutritional and consultative services to all PKU affected individuals born in Nebraska.

USA - New England

http://www.necpad.org
The New England Connection for PKU and Allied Disorders 5 Jones Lane East Sandwich, MA 02537 (508) 888-2295

USA - New England

http://web1.tch.harvard.edu/newenglandconsortium/RMWebsite/PKUGuide/PKUGuide.htm
A QUICK GUIDE to PKU  Children's Hospital Boston Massachusets

USA - New Hampshire

http://www.parenttoparentnh.org/ezhomepg/userpages/wintery.html

http://proteacher.net/archive/posts/2001/01/25/12599.html
Becky mom of 4 sons pku   jimmysmom_2000@yahoo.com

USA New Jersey

http://noblemen.20m.com/persdenniscarlson.html
DENNIS CARLSON (alias "Den Carlberg")

USA New Mexico

http://www.sikhnet.com/nmpku/nmpku.nsf/homepage
L’Organisation PCU du Nouveau-Mexique Presid./Webm. Sat Guru Singh Khalsa cpku 25y/o

USA New Mexico

http://sld.state.nm.us/nms/

http://sld.state.nm.us/nms/pkugroup.htm

Website designed and updated by Danny Gray

USA - New York

http://www.pbs.org/fredfriendly/whocares/your_stories/becky_shively.html
Becky Shively de Niagara Falls, New York

USA North Texas

http://www.ntxpku.org/
L’Association PCU du Texas du Nord

USA-Pennsylvanie

http://members.tripod.com/kickbutt162000/index.htm
People     Website de Josh 18 ans GA1 Glutaric Aiduria Type 1

USA Pennsylvanie

http://www.pkumac.org/

MACPAD Mid-Atlantic Connection for PKU and Allied Disorders  Président : Judy Griffith

USA Pennsylvanie

http://www.pkulife.com/default.asp

Your source for PKU Software and Products

USA -Tennessee

http://www.geocities.com/PKU_Kids/FunDay.html
Jennifer Jenkins

USA-Texas

http://www.tdh.state.tx.us/newborn/pku.htm

http://www.tdh.state.tx.us/newborn/new_pku3.htm

http://www.tdh.state.tx.us/newborn/new_pku7.htm

Newborn Screening Case Management Program

USA-Vermont

http://www.interscientific.com/prod_pku.htm

http://www.interscientific.com/home.htm
IS   NEONATAL SCREENING TEST KIT

USA -Vermont

http://www.partoparvt.org/vv.html
TREVOR MERCHANT PKU  10 years old

USA-Virginie

http://www.kuntrynet.com/users/ddraig/
The PKU Diet Sheet Creator (PKUDSC) software d’Owen Morgan

USA Washington

http://www.pkunews.org/          http://www.wisc.edu/wisconsinpress/books/0407.htm          

National PKU News de Virginia Schuett diététicienne de Seattle

USA Washington

http://depts.washington.edu/pku/

University of Washington  PKU Clinic Seattle

USA - West Virginia

http://www.angelfire.com/me4/toni_michells_page/

http://www.angelfire.com/me4/toni_michells_page/tonimichell.html

http://www.fesoc.com/pku/        http://www.angelfire.com/ky3/tonilovesadonai/pku.html
James,24 years old and Toni Kendall, 24 years old, wife to James / PKU
Jackie Baty 22y cpku Malden, Massachusetts et Toni Kendall 24y Pku Virginie occidentale USA

PKU BASICS on the Net Jackie Baty And Toni Kendall Go Through These

USA - Wisconsin

http://www.familyvillage.wisc.edu/lib_pku.htm

by rowley@waisman.wisc.edu

USA Wisconsin

http://www.ameritech.net/users/hardys/pkunewsfromwisconsin.htm

PKU News From Wisconsin  Crééé par Michelle Hardy

USA Wisconsin

http://www.ameritech.net/users/hardys/stories.htm

Crééé par Michelle Hardy

USA

http://www.pkuperspectives.com/
USA PKU Perspectives' Mission Karen Aland de Pleasant Grove  Utah

USA

http://www.geocities.com/guamprayerconnection/annespage.html

http://www.geocities.com/guamprayerconnection/calebspage.html

Website d’Anne (PCU) et Brian Fjeld-Kirsten de Guam, parents de Caleb

USA

http://photos.yahoo.com/bc/annekirsten2000/

Anne's Yahoo Photo Albums –Anne (Pcu), Brian, Caleb Fjeld-Kirsten

USA

http://www.geocities.com/ridakm/About-Dan.html

http://www.geocities.com/ridakm/index.html
Dan's Story  Jan and Dicks website  Very beautiful website !!

USA

http://pkuandmore.tripod.com/
Website de Rosalind Jessica Voelker

USA

http://www-ni.beth.k12.pa.us/news/authors/buck/buck.htm
Carol née en 1921, fille de la célèbre écrivain américaine Pearl S. Buck était PKU

USA

http://www.vineland.org/history/trainingschool/people/buck.htm
Carol née en 1921, fille de Pearl Sydenstricker-Buck et de John Lossing Buck était PKU

USA

http://nicollsadc.com/pku/    http://nicollsadc.com/pku/SupportGroups/
WebSite Pku Global Discussion Forum de Scott, Erin, Brandon et Anthony Nicolls

USA

http://dawnsville.tripod.com/
DAWNSVILLE  de Dawn Estle   Zak  PKU

USA

http://members.tripod.com/kickbutt162000/id20.htm
PKU testing page

USA

http://medweb.pc.edu/students/med2002/thompso1/index.html
Carl Thompson's Web Page of Phenylketonuria (PKU)

USA

http://pbl.cc.gatech.edu/mindy/711
Seth Lilavivat, Greg Forlenza, Heather Yi

USA

http://www.babiesonline.com/babies/b/balthazar/
Alexander's web page   Alexander Mendel is cpku -13 months old

USA

http://www.family.org/fofmag/pf/a0019908.html
Dr James DOBSON and PKU

USA

http://www.image.tcu.edu/01december/pku.html

http://web47.radiant.net/~pkunews/guthrie/winners2.htm
Erin LaMourie, 19 years, Lenexa, KANSAS

USA

http://www.geocities.com/PKU_Kids/FunDay.html
PKU KIDS FUN DAY !  PKU_Kids@yahoo.com

USA

http://www.aafp.org/afp/991001ap/1462.html

http://www.prevention-news.com/1998/marapr98/b8koch.htm

http://www-rcf.usc.edu/~rkoch/

http://www.scdd.ca.gov/programs_projects/Default.htm
Issues in Newborn Screening for Phenylketonuria by RICHARD K. KOCH, M.D. University of Southern California School of Medicine, Los Angeles, California

USA

http://www.nd.edu/~ljordan/butterfly/genetics/pku.ppt
PHENYLKETONURIA PKU at a Glance  Diaporama

USA

http://www.geocities.com/jkelly7112/

http://web47.radiant.net/~pkunews/personal/travel10.htm
The Kelly Family  Julie Kelly PKU  from Albuquerque, New Mexico

USA

http://www.lowprotein.com/
lopro@webuniverse.net    lopro@relaypoint.net

USA

http://www.ctispregnancy.org/pdf/pku.pdf
Doc Pdf  MATERNAL PKU

USA

http://www.marchofdimes.com/professionals/681_1219.asp
Information specialists at the March of Dimes

USA

http://www.moondragon.org/lab/maternalpku.html
MoonDragon's Lab Information & Tests Maternal PKU

USA

http://www.nucdf.org/nbs_pin_project.htm
NUCDF's webpage Newborn Screening PIN PROJECT

USA

http://www.davidicke.net/medicalarchives/effects/pku.html
David Icke’s Medical Archives

USA

http://www.umassmed.edu/nbs/

http://sld.state.nm.us/nms/
The New England Newborn Screening Program

New Mexico is a member of the Mountain States Regional Genetic Services Network (MSRGSN)

USA

http://www.keepkidshealthy.com/newborn/newbornscreening.html
Newborn screening Tests

USA

http://www.rarediseases.org/
The NORD: National Organization of Rares Disorders

USA

http://www.pbs.org/fredfriendly/whocares/your_stories/becky_shively.html
Becky Shively Niagara Falls, NY

USA

http://www.astoria-pacific.com/appku.php3
The Astoria-Pacific SPOTCHECK® Phenylalanine test

USA

http://srv2.lycoming.edu/~newman/courses/bio22298/disorderpapers/Pku/preliminary.htm
What is Phenylketonuria, and how is it treated?

USA

http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/P/Phenylketonuria.html

Kimball's Biology Pages       Phenylketonuria (PKU)

USA

http://www.nhgri.nih.gov/ELSI/TFGT_final/appendix5.html
The History of Newborn Phenylketonuria Screening in The U.S. by Diane B. Paul

USA

http://www.hollandandbarrett.com/Concern/Phenylketonuria.htm
Phenylketonuria

USA

http://www.keepkidshealthy.com/welcome/conditions/phenylketonuria.html
Phenylketonuria by Barb Durso, MD

USA

http://www.medformation.com/mf/mm_qdis.nsf/qd/nd0346g.htm
Medformation .com  PHENYLKETONURIA IN CHILDREN

USA

http://phenylketonuria.org/pku/

http://pku.raredisease.org
Family Support Message Board de Danny Carlton

This board is for people and familes with PKU

USA

http://www.yourgenesyourhealth.org/ygyh/mason/ygyh.html?syndrome=pku
Your Genes your Health funded by Josiah Macy,Jr Foundation

USA

http://groups.yahoo.com/group/pkuadults/

Group Discussion Pku Adults : Share ideas with other adults who have PKU

Post message : pkuadults@yahoogroups.com

Subscribe : pkuadults-subscribe@yahoogroups.com

USA

http://medweb.pc.edu/students/med2002/thompso1/index.html

Carl Thompson's Web Page of  Phenylketonuria (PKU)  thompso1@pc.edu

USA

http://jhhs.client.web-health.com/web-health/topics/GeneralHealth/generalhealthsub/generalhealth/genetic_disorders/pku_retard.html
PKU (phenylketonuria) can lead to mental retardation

USA

http://www.soxkat.com/~shane/index.htm
Phenylketonuria     pku@come.to

USA

http://www.uic.edu/classes/phar/phar332/Clinical_Cases/aa%20metab%20cases/PKU%20Cases/PKU%20intro.htm

PHAR 332

USA

http://www.babiesonline.com/babies/d/dakota/
Roy and Kandy Frederick : Dakota, Rose Frederick pku born 5/2/2001

USA

http://pbl.cc.gatech.edu/mindy/860

http://pbl.cc.gatech.edu/mindy/711
PKU: Prognosis and Incidence Rate

USA

http://www.counsel.neu.edu/Information%20for%20Parents/Brief%20Articles/%23451074
Phenylketonuria (PKU) - Information for Parents

USA

http://www.chem.ucla.edu/~alice/Chemistry/dept/Faculty/pku.html

University of California, Los Angeles : Molecular Basis of PKU

USA

http://pub11.ezboard.com/fgentlechristianmothersfrm5.showMessage?topicID=312.topic

Gentle Christian Mothers Message Board

USA

http://www.drgreene.com/21_691.html

http://www.drgreene.com/21_1156.html
Dr Greene.com

USA

http://members.tripod.com/kickbutt162000/id20.htm

PEOPLE : PKU testing page

USA

http://www.midwifemama.com/pku.html

Newborn Procedures  Circle of Life Midwifery

USA

http://www.aafp.org/afp/20010401/practice.html

The American Academy of Family Physicians   NIH Consensus Statement on Phenylketonuria

USA

http://www.americanbaby.com/ab/CDA/pediatric_health_center_detail/0,1763,10942-0-375,00.html?s=375
Pediatric Health Center

USA

http://www.lef.org/prod_hp/abstracts/php-ab064.html#3

PHENYLALANINE

USA

http://www.personalmd.com/news/n0104112138.shtml

PersonalMD:Restricted diet advised for pregnant women with PKU

USA

http://www.ernestina.org/ship/logbook2001/lg070901.html
PKU TEEN Challenge Ernestina Logbook Page
The Massachusetts Schooner ERNESTINA

USA

http://www.nucdf.org/science_magazineNBS.htm

The American Association for the Advancement of Science

Fast Technology Drives New World of Newborn Screening Eliot Marshall

USA

http://www.geocities.com/silverwaves44/Research/PKU/PKU.htm
The Genetics of PKU

USA

http://www.nih.gov/news/pr/oct2000/omar-18.htm
NIH: NATIONAL INSTITUTES OF HEALTH Consensus Panel Recommends Comprehensive Approach to Life Long Care for PKU

USA

http://www.merck.com/pubs/mmanual/section19/chapter269/269i.htm
Anomalies of amino acid metabolism

USA

http://www.wadsworth.org/newborn/

http://www.wadsworth.org/newborn/order.htm
The concept of newborn screening began in Buffalo, New York in 1960 with the work of Robert Guthrie       8,500 pku in USA

USA

http://www.thearc.org/faqs/pku.html
The Arc National Headquarters 1010 Wayne Ave. Suite 650
Silver Spring, MD 20910  info@thearc.org

USA

http://www.hmcnet.harvard.edu/psych/redbook/89.htm
STUDY OF EXPANDED NEWBORN SCREENING

USA

http://www.people-inc.org/museum/
The Museum of Disability History

USA

http://www.genetests.org/
Genes Tests University of Washington, Seattle, Usa

USA

http://www2.et.byu.edu:8080/~cjs44/history.htm#pku
Website de Clayton Simmons père de John PKU né le 15 Décembre 2002

USA - VERMONT

http://www.geocities.com/cortney_and_pku/
CORTNEY’S PKU WEBSITE

USA - VERMONT

http://jpc32.frostyhost.com/
JARROD’S PKU WEBSITE

USA

http://www20.brinkster.com/thepkuplace/

http://www20.brinkster.com/thepkuplace/familycamp2004.html
THE PKU PLACE    alisondietrich@hotmail.com

USA

http://gladstone.uoregon.edu/~abedney/
SITE D’ANNE BEDNEY (Oregon) mère d’Evan Michael pku

USA

http://groups.msn.com/pkuyouthandyoungadults
Missy Badalyan 28ans pku  Group Manager

USA

http://www.kings-realm.net/hand/BirthStories/MichaelColeman.htm
Michael Allen Coleman

USA

http://www20.brinkster.com/thepkuplace/
Ali Dietrich 19-year-old w/ PKU  Walla Walla, WA
alisondietrich@hotmail.com

USA

http://www.pkuworldlink.org/
SITE DE SARAH FOSTER PKU 33 ANS

USA

http://www.formydiet.com/

http://www.formydiet.com/MessageBoard/ultimatebb.cgi
Site de Laura and Amram (Ami) Assayag, la tante et l’oncle de 2 garçons PKU

USA

http://www.tuxesfortia.com
Adresse(s) d'email :  alisonpiziali@HOTMAIL.COM

 

 
 

 

 
 

 

 
 

 

 
 
EUROPE  EUROPA

EUROPE EUROPA

http://www.espku.org/
ESPKU

EUROPE EUROPA

http://www.pinocchio.org/
Le site  recense les possibilités d'accompagnement, d'éducation spéciale et de réadaptation pour enfants avec un handicap en Europe et dans le monde

Monde

http://www.isns-neoscreening.org/
International Society  of Newborn Screening Président: Prof. JL Dhondt (France)

Allemagne Cologne

www.br-schroeder.de
WebSite de Birgit Schröeder-Schumacher, PCU de Cologne

ALLEMAGNE

http://www.dig-pku.de/
Association DIG-PKU EV Vice Présidente Dr Miriam Hein pcu et pédiatre

ALLEMAGNE

http://www.phenylketonurie.de/

http://www.phenylketonuria.com/gaestebuch/
WebSite de Tino Ringer père de Stefan PCU

ALLEMAGNE

http://www.phenylketonurie.de/forum/
PKU-FORUM

ALLEMAGNE

http://www.pku.de/
WEBSITE PCU ALLEMAND

ALLEMAGNE

http://www.forumromanum.de/member/forum/forum.cgi?USER=user_1331
FORUM PKU

ALLEMAGNE

http://www.wischnewski-online.de/pku_ernaehrung.htm
Website du Dr Wischnewski Erik

ALLEMAGNE

http://home.t-online.de/home/diehl.hans-juergen/#
Boa et Bergmolch Website PCU de Ruth Fisch et Hans-Jüergen Waage

ALLEMAGNE

http://www.pku-info.org/index.php?language=deutsch
Joerg et Steffi Hohn de Lengfeld/Otzberg Parents d’Ismail 6ans Pcu

ALLEMAGNE

http://www.pkuworld.de/
Website de Ralph et Martina Slany      kontakt Contact : info@pku-world.de

ALLEMAGNE

http://www.pku.unet.de/
Une aide précieuse pour tous les PCU

ALLEMAGNE

http://www.pku-verein-duesseldorf.de/
PKU Verein Düsseldorf e.V. Zum Nordkanal 7 47929 Grefrath E-Mail: norpe@web.de

ALLEMAGNE

http://www.tcc-hagedorn.de/
Site perso de Tobias Hagedorn d’ENGER, secrétaire de l’ESPKU

ALLEMAGNE

http://www.pkuweb.de/
Website des parents d’Elena, pcu, site réalisée par Gerhard Schneider, son oncle

ALLEMAGNE

http://link.springer.de/link/service/journals/00431/bibs/0159014/0159s074.htm
European Journal of Pediatrics Development of intelligence in early treated phenylketonuria by Peter Burgard

ALLEMAGNE

http://www.wischnewski-online.de/pku_ernaehrung.htm

http://www.wischnewski-online.de/home.htm

Dr. Erik Wischnewski  Heinrich-Heine-Weg 13  D-24568 Kaltenkirchen

ALLEMAGNE

http://pku.mainchat.de/

PKU CHAT : Herzlich Willkommen im PKU-World-Chat !

ARMENIE

http://magic.am/sos/

Susanna Hovhannissian live in Yerevan and is mother of little boy pku 3years old

AUTRICHE

http://home.pages.at/oegast/
Association PCU autrichienne : OEGAST

BELGIQUE Belgium

http://www.geocities.com/pharma38/

Association Pcu BOLERO du centre Pinocchio dirigé par le Pr François à Liège

BELGIQUE Belgium

http://www.cedores.be/telesoc/DI03189.htm

ASSOCIATION NATIONALE D’AIDE AUX PHENYLCETONURIQUES - ANAP
RUE DE L'AISETTE, 69 - 7080 EUGIES Tél: 065/66.53.92

BELGIQUE Belgium

http://www.boks.be/

Asbl : Association Belge enfants atteints d'une maladie métabolique

regroupe plus de 51 PCU

BELGIQUE Belgium

http://users.swing.be/pierre.foulart/obj_cv.htm#phenylathon

Le PHENYLATHON organisé par l’Olympique Blaugies Jogging de Pierre Foulart

Un chèque de 795.654 FB a été remis à l’Association Nationale d'Aide aux Phénylcétonuriques

BELGIQUE Belgium

http://users.skynet.be/fa388694/

http://www.pcu.be.tf/

http://users.skynet.be/fa388694/Admin/Reglements/Objectifs_2004.pdf

 

Site PCU de Julien Beeckman

BULGARIE Bulgaria

http://ivo.medfac.acad.bg/lmp/Masscreen.htm

Mass neonatal screening in Bulgaria

CROATIE

http://www.fenilketonurija.hr/

Domagoj Štajduhar UDRUGE ZA POMOĆ OBOLJELIMA OD FENILKETONURIJE (PKU)

CROATIE

http://www.mzt.hr/projekti9095/3/01/090/proj_h.htm
NASLJEDNE METABOLIÈKE BOLESTI DJECE

CROATIE

http://www.pharma.hr/bmb/predavanja/dusik/index.htm

DIAPORAMA METABOLIZAM DUŠIKOVIH SPOJEVA

DANEMARK

http://www.pku.dk/

DENMARK PKU foreningen for Danmark

DANEMARK

http://asp.smscom.dk/pku.dk/right.asp
PKU foreningen for Danmark

DANEMARK

http://www.netdoktor.dk/sygdomme/Fakta/pku.htm
Føllings sygdom (Fenylketonuri)Af Torben Bjerregaard Larsen, læge

DANEMARK

http://www.nilab.com/dk/main.html
Compagnie Nilab A/S de Stein H. Jensen à Middelfart au Danemark qui vend le PREKUNIL

DANEMARK

http://www.csh.dk/
CENTER FOR SMÄ HANDICAPGRUPPER csh@csh.dk

Espagne Andalousie

http://www.iespana.es/fenilcetonuriapkujm/
ASOCIACIÓN PKU Y OTM DE ANDALUCÍA

ESPAGNE  SPAIN

http://www.eintec.es/faepku/page3.html
F.A.E. PKU y O.T.M

ESPAGNE  SPAIN

http://www.euskadipkuotm.org/
Euskadiko PKU Elkartea y otros errores del metabolismo

ESPAGNE  SPAIN

http://www.hsjdbcn.org/castm444_2_22.html
Laboratorio de metabolopatías del Hospital Sant Joan de Déu

ESPAGNE  SPAIN

http://www.ae3com.org/qsom.htm
A.E.C.O.M : Asociación Española para el Estudio de los Errores Congénitos del Metabolismo Presidente: Guillem Pintos Morell

ESPAGNE  SPAIN

http://www.karlosnet.com/General/pku.shtml
Recetas preparadas por Karlos Arguiñano y cedidas por la Asociación Euskadi P.K.U.

 

FRANCE

 

FRANCE

http://www.afdphe.asso.fr

http://perso.wanadoo.fr/afdphe/

http://www.bmlweb.org/depistage_neonat.html

http://perso.wanadoo.fr/afdphe/french/depeche_fr.htm

http://www.cliniquecotteel.worldnet.fr/afdphe.htm

http://www.john-libbey-eurotext.fr/articles/mtp/4/6/399-400/

AFDPHE

Association Française pour le Dépistage et la Prévention des Handicaps de l'Enfant

Président : Mr le Professeur Jean-Pierre Farriaux de Lille

Mr Farriaux a obtenu le Guthrie Award 2001

FRANCE

http://www.univ-st-etienne.fr/lbti/acomen/revue/2001/pdf4/sarles.pdf

J. SARLES   N. MAURIN   LE DEPISTAGE NEONATAL

 AREDEMAG  Hôpital d’Enafnts de la Timone à Marseille

FRANCE

http://www.cs-i.com/pediatrie/GPublic/allogen1.htm

ALLO-GENES ( un centre d'information sur les maladies génétiques ) dirigé par Marie-Louise Briard, professeur de génétique à l'hôpital Necker-Enfants Malades

FRANCE Chanonat

http://orphanet.infobiogen.fr/associations/JARDIN/JARDIN.html

Association les Enfants du Jardin

FRANCE

http://www.l-envol.org/fr/fr_01.html

Etablissement de santé type "Maison d'Enfants à Caractère Sanitaire" relevant de la discipline des soins de suite / organise des camps et a déjà accueilli des enfants PCU