ࡱ> c`ab( / 00DArialngsRomantt,~x: 0DArial Blackmantt,~x: 0" DTimes New Romantt,~x: 00DWingdingsRomantt,~x: 0 A .  @n?" dd@  @@`` XP|f        0AA@8ʚ;ʚ;g4EdEd\]~x: 0ppp@ <4dddd@ 0t,~ <4BdBd@ 0t<4!d!d@ 0tA9___PPT10 pp6The Psychologist and I0\Working together to manage the demands of PKU Claire Rowlands & Anna Brazier Cardiff S Wales"]Z./How we come to be doing this!A referral Working together Writing together Now this! Aims - To share our experiences and to offer an opportunity for you to share yours in the workshop to follow Themes - Thinking psychologically about living with PKU and about collaborative working - parents and professionalsFP9gl,Parents and Professionals: Working together.--(gWorking in partnership demands parents and professionals to see things from different perspectives. This talk and the workshop to follow is our attempt to look at how thinking psychologically can help with the every day reality of bringing up a child with PKU. It is also our attempt to share our different perspectives on the experience of working together.hZhJFirst Reactions: Parents perspectiveIs it / are we that bad or mad? What is a psychologist? What could she / he do to help? What will my child make of it? Another thing to cope with / more appointments? 0Our Main Concerns about TesniFlat refusal to drink Maxamaid  Rituals surrounding Maxamaid Amount of time (Tesni s and family s) spent on Maxamaid every dayThat first appointmentWhat on earth are we in for? How could a psychologist possibly help us? A pleasant chat in Anna s office! kl)Main things that made a difference for usBeing able to take a step back and view the situation objectively Talking things through with someone from outside the family Feeling that we CAN manage Tesni s behaviour Developing clear and consistent aims and strategies  1Looking back: Main changes we have tried to make 22(8Rewarding the  right behaviour Consistent, non-negotiable rules and expectations around meals and Maxamaid Positive consequences follow drinking Maxamaid  Meeting a family for the first time: A Psychologist s perspectiveBB(Starting with parents concerns Understanding the impact of a chronic condition Listening to parents and children Making time Having a psychological framework Z (Understanding the demands of a conditionHow the diagnosis was discussed at the outset - early relationships with the medical team Everyday practical demands of the treatment regime and its impact on family life (finger pricks & diet) Potential outcomes / consequences if regime difficult to maintain   (A Framework for Thinking Psychologically))(Thinking about the childTemperament - Relationships Development - Age and Stage Where in the family - how similar different to brothers and sisters Knowledge and understanding of PKU How they cope with procedures  Another Psychological Framework JCommon ideas that will influence which changes families will want to make.KK Oh he has so much to contend with it doesn t feel right to be strict about X X is too strict so I give him a little bit extra Rewards as  bribery . 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