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Welcome to the NSPKU web site.IMPORTANT NOTICEWe have experience unauthorised changes to our website including additions of links at the bottom of some of our pages. These links selling drugs have been added without our consent and may cause harm to your computer. Please ignore them. In order to correct this, we are having to restore this website from a backup and so you may experience difficulties during this time. We apologise for the inconvenience. If you cannot find the information you require, please telephone our helpline on 0208 364 3010
Please follow the links at the side and the top of these pages to navigate around the web site or use the quick links below to find the most popular items.
Quick links
What is the National Society for Phenylketonuria (NSPKU)?The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see history. The NSPKU actively promotes the care and treatment for those with PKU and works closely with medical professionals in the UK. It organises conferences and others throughout the UK, publishes a wide range of publications (including food lists) for parents, those with PKU and medical professionals. Events - the NSPKU organises conferences and study days. Local support groups also hold study days and other events. The NSPKU also sponsors medical research into PKU. If you are a new parent of a baby that has just been diagnosed with PKU, we suggest that you follow the link to the What is PKU page before exploring the rest of the site.
What's New?
Please NoteThe treatment of PKU varies for each individual. No patient should alter their own treatment as a result of anything written in this web site without first consulting their doctor or dietitian. The NSPKU cannot be held responsible for the content of any external links. The content of this web site are NSPKU copyright. If you wish to reproduce anything from this site, please read our copyright notice. This site contains a few photographs mainly of past events. If you appear in one of these and object, please contact the webmaster advising which picture you would like removed. Please contact the webmaster if you find any errors or faulty links.
Contact Information
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