What is the NSPKU?

The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see history.

The NSPKU actively promotes the care and treatment of PKUs and works closely with medical professionals in the UK.

It organises events such as conferences and study days throughout the UK, publishes a wide range of publications (including food lists) for parents, PKUs and medical professionals. Local support groups also hold study days and other events.

The NSPKU also sponsors medical research into PKU.

The NSPKU is run by the Council of Management who are volunteers with PKU in their families. You can contact individual COM members by using the email addresses on our Council of Management page, there is also pages for General and Urgent enquiries.

Information on how to join the society can be found on our How to Join page.

General society forms are available on the Forms page, and society resources such as logos are available on the Resources page.