Other Organisations
UK Sites and Contacts 
Patient Information Publications
A site with links to many of the self-help and patient support groups in the UK.
European Sites and Contacts 
World Sites and Contacts 
NOAH
A USA-based site that gives a good general description of PKU and its treatment. This is a site that would be useful to families new to PKU as well as students.
Phenylalanine Hydroxylase database
Another part of the Canadian site giving in-depth details about Phenylalanine Hydroxylase. This site contains a lot of information that would be useful to students and researchers.
Montreal Children's Hospital
MCH is one of the foremost PKU treatment centres in Canada. This link takes you to the web version of MCH's PKU Resource Booklet for Families. This gives a good, readable guide to PKU, its diagnosis and treatment. As its name suggests, it is aimed at the
Children's PKU Network
A California based organisation who provide support and literature to many PKU families across the US.
PKU Listserv
A super information sharing facility set up by BJ & Marsha Magol who also look after the Florida Support Group web site. Listserv is a shared email facility whereby people can share their concerns, information and ideas about PKU with other people around
PKU Support Group of Florida
This lists lots of contact points in Florida. This could be useful for people with PKU and their families who may be visiting Florida.
National PKU News
This is a prime source of PKU information in the United States. Much of the information is aimed at dealing with health provision in the US but there are some excellent articles and links to other information sources and information on how to subscribe to
About Our External Links
If you would like your site listed please apply to the Webmaster
The NSPKU makes every effort to ensure that the sites listed below are relevant to PKU, suitable for a general audience, and that the links are correctly identified. However, these sites are not under the control of the NSPKU and therefore responsibility for their availability and content lies with their authors. Inclusion of a link here does not constitute an endorsement.
If you find that any of the links below consistently fail to work, please email us and we will amend or remove the link.
