News

Dietary Information

Announcements relating to dietary products.

Events

Upcoming events from the society and its friends

Publications

News about new and updated publications

General

Other news relating to PKU.
ESPKU Competition
Posted Monday 3rd August 2015
Are you over the age of 18? Do you have PKU?? Would you like to attend the ESPKU Conference in Berlin??? If you answer yes...Read More
The NSPKU is looking for a News & Views Editor and Copywriter
Posted Monday 3rd August 2015
Please see advert for further information on these voluntary vacancies. Read More
NHS England decision on Kuvan/Sapropterin for PKU
Posted Thursday 9th July 2015
NSPKU Statement on NHS England decision - Kuvan / BH4 / Sapropterin Many of you may be aware that NHS England has been considering a...Read More
Let Your Voice Be Heard
Posted Monday 15th June 2015
On Tuesday 16th June 2015 between 2.30pm and 4pm a debate will be taking place in Westminster Hall, House of Commons on “Access to...Read More
BH4/Kuvan Commissioning Policy
Posted Tuesday 14th April 2015
NHS England is currently considering a policy for the use of BH4 in children with PKU. BH4 is a chemical “helper” that...Read More
Buses for Conference 2015 UPDATED
Posted Wednesday 4th March 2015
We will be providing buses this year to help people get from popular locations to the conference center, in Cumbernauld. Glasgow:...Read More
Conference 2015 nearly sold out, programme now available.
Posted Monday 2nd March 2015
There are now only a few rooms left for the 2015 NSPKU Conference to be held in Cumbernauld in Scotland on the 13th March.  Read More
Notice of AGM 2015
Posted Monday 2nd March 2015
The Annual General Meeting of the National Society for Phenylketonuria (UK) Ltd. will be held on Sunday 14th Match 2015 at 5.15pmin...Read More
Paula's PKU Challenge!
Posted Wednesday 17th December 2014
On the first ever International PKU Day - 28th June 2014 - the NSPKU Dietitian, Paula Hallam, took a 'PKU challenge' and went on...Read More
Booking now open for the NSPKU 42nd Annual Conference and AGM 2015
Posted Tuesday 16th December 2014
Booking is now open for the 2015 Annual Conference and AGM. Read More

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