News

Dietary Information

Announcements relating to dietary products.

Events

Upcoming events from the society and its friends

Publications

News about new and updated publications

General

Other news relating to PKU.
PKU Funding Battle
Posted Tuesday 8th August 2017
Family wins High Court challenge over drug. A summary of the case, the result, the reasons for the court's decision and the...Read More
An Introduction to Phenylketonuria
Posted Friday 7th July 2017
Natasha Macmanard is a final year undergraduate student studying BSc Media Production at De Montfort University, Leicester. Natasha is...Read More
Call For Action: 6 key demands for change
Posted Wednesday 5th July 2017
Following a very successful awareness event in Parliament on International PKU Day 2017 the NSPKU would like to build on the support...Read More
International PKU Day 2017 Presentation
Posted Monday 3rd July 2017
Following a successful event in Parliament the power point (below) provides a summary of the talks we presented to the MPs and invited...Read More
Genetically engineered probiotic for the treatment of phenylketonuria (PKU); assessment of a novel treatment in vitro and in the PAHenu2 mouse model of PKU
Posted Wednesday 7th June 2017
The PKU probiotic work, which the NSPKU helped fund, has now been published in PLOS ONE, link...Read More
Important Information Concerning Nutricia Product - PKU Anamix First Spoon
Posted Wednesday 3rd May 2017
From Nutricia Ltd... Due to a supply interruption we are out of stock of PKU Anamix First Spoon. We are currently working hard...Read More
We Need Your Help
Posted Saturday 25th March 2017
Dear Member of Rare Disease UK We need your help. On Tuesday, MPs will meet in Parliament to debate the implementation of the UK...Read More
University of Leeds Research Study
Posted Saturday 25th March 2017
Postgraduate Researcher, Denise Hofman, from the University of Leeds is conducting an online study looking into adherence to diet and...Read More
LDA Telephone Market Research
Posted Wednesday 22nd March 2017
LDA Research are running a market research survey for carers of children with PKU on behalf of a nutrition company who are developing a...Read More
Book Conference 2017 Places Online
Posted Tuesday 14th March 2017
This year's NSPKU annual family conference and holiday weekend takes place at The Oxford Belfry. This hotel is located on a beautiful...Read More

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