News

Dietary Information

Announcements relating to dietary products.

Events

Upcoming events from the society and its friends

Publications

News about new and updated publications

General

Other news relating to PKU.
Genetically engineered probiotic for the treatment of phenylketonuria (PKU); assessment of a novel treatment in vitro and in the PAHenu2 mouse model of PKU
Posted Wednesday 7th June 2017
The PKU probiotic work, which the NSPKU helped fund, has now been published in PLOS ONE, link...Read More
Important Information Concerning Nutricia Product - PKU Anamix First Spoon
Posted Wednesday 3rd May 2017
From Nutricia Ltd... Due to a supply interruption we are out of stock of PKU Anamix First Spoon. We are currently working hard...Read More
We Need Your Help
Posted Saturday 25th March 2017
Dear Member of Rare Disease UK We need your help. On Tuesday, MPs will meet in Parliament to debate the implementation of the UK...Read More
University of Leeds Research Study
Posted Saturday 25th March 2017
Postgraduate Researcher, Denise Hofman, from the University of Leeds is conducting an online study looking into adherence to diet and...Read More
LDA Telephone Market Research
Posted Wednesday 22nd March 2017
LDA Research are running a market research survey for carers of children with PKU on behalf of a nutrition company who are developing a...Read More
Book Conference 2017 Places Online
Posted Tuesday 14th March 2017
This year's NSPKU annual family conference and holiday weekend takes place at The Oxford Belfry. This hotel is located on a beautiful...Read More
Children’s Dietetic Outpatients Service
Posted Thursday 26th January 2017
URGENT - Do you have anything to say about a Specialist Metabolic service potentially leaving the hospital and going into...Read More
News & Views 152
Posted Monday 9th January 2017
Did you receive your copy of News & Views issue 152 just before Christmas? If you are a member of the NSPKU and you did not...Read More
Christmas Low Protein Goodies
Posted Thursday 8th December 2016
Festive sweetie treats and tasty present ideas all together in this jam packed Christmas Goodie Guide! Read More
Genetic Alliance UK IFR Patient Experience Survey
Posted Wednesday 7th December 2016
SURVEY: PATIENT EXPERIENCES OF INDIVIDUAL FUNDING REQUESTS    Have you accessed KUVAN® (sapropterin...Read More

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