News

Dietary Information

Announcements relating to dietary products.

Events

Upcoming events from the society and its friends

Publications

News about new and updated publications

General

Other news relating to PKU.
The Complete European Guidelines on Phenylketonuria: Diagnosis and Treatment
Posted Monday 16th October 2017
Please use this link to access The Complete European Guidelines on Phenylketonuria:...Read More
Individual Funding Requests for Kuvan (BH4) Treatment
Posted Friday 29th September 2017
The NHS does not routinely commission Kuvan treatment for phenylketonuria (PKU) except for pregnant women. The National Society for...Read More
NHS will fund drug treatment after legal battle
Posted Friday 29th September 2017
  A young boy with the rare disease Phenylketonuria (PKU) is to commence treatment with the drug Kuvan, after the NHS has...Read More
New Disability Living Allowance Guide
Posted Tuesday 12th September 2017
A new comprehensive guide to assist with the completion of the Disability Living Allowance form. Read More
PKU Funding Battle
Posted Tuesday 8th August 2017
Family wins High Court challenge over drug. A summary of the case, the result, the reasons for the court's decision and the...Read More
An Introduction to Phenylketonuria
Posted Friday 7th July 2017
Natasha Macmanard is a final year undergraduate student studying BSc Media Production at De Montfort University, Leicester. Natasha is...Read More
Call For Action: 6 key demands for change
Posted Wednesday 5th July 2017
Following a very successful awareness event in Parliament on International PKU Day 2017 the NSPKU would like to build on the support...Read More
International PKU Day 2017 Presentation
Posted Monday 3rd July 2017
Following a successful event in Parliament the power point (below) provides a summary of the talks we presented to the MPs and invited...Read More
Genetically engineered probiotic for the treatment of phenylketonuria (PKU); assessment of a novel treatment in vitro and in the PAHenu2 mouse model of PKU
Posted Wednesday 7th June 2017
The PKU probiotic work, which the NSPKU helped fund, has now been published in PLOS ONE, link...Read More
Important Information Concerning Nutricia Product - PKU Anamix First Spoon
Posted Wednesday 3rd May 2017
From Nutricia Ltd... Due to a supply interruption we are out of stock of PKU Anamix First Spoon. We are currently working hard...Read More

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