News

Dietary Information

Announcements relating to dietary products.

Events

Upcoming events from the society and its friends

Publications

News about new and updated publications

General

Other news relating to PKU.
UK Book Release - Jam Sandwiches
Posted Thursday 28th April 2016
Patricia Lorente is a writer from Spain and has a daughter with PKU. Patricia has written and published Jam Sandwiches with the help of...Read More
New product launch - KoKo Dairy Free Yogurts
Posted Friday 15th April 2016
Koko dairy Free has launched an exciting range of low protein and dairy free yogurt alternatives. They are stocked in Morrisons, Asda...Read More
Conference Creche & Trip Booking Now Online
Posted Thursday 25th February 2016
Online booking for both the Creche is now available online.   If you have booked a place and would like to make use of...Read More
Grant Fund
Posted Saturday 16th January 2016
We are pleased to announce a new grant fund for our members to be able to apply for assistance with Conference costs and other funding...Read More
Low Protein Calendar
Posted Wednesday 25th November 2015
Christmas is around the corner, and so we've prepared a list of low protein chocolate Christmas calanders which are available for...Read More
Webinar: Sapropterin Policy Decision
Posted Tuesday 8th September 2015
The NSPKU will be meeting with NHS England (NHSE) tomorrow (9th September) to discuss the recent decision by NHSE to not fund...Read More
ESPKU Competition
Posted Monday 3rd August 2015
Are you over the age of 18? Do you have PKU?? Would you like to attend the ESPKU Conference in Berlin??? If you answer yes...Read More
The NSPKU is looking for a News & Views Editor and Copywriter
Posted Monday 3rd August 2015
Please see advert for further information on these voluntary vacancies. Read More
NHS England decision on Kuvan/Sapropterin for PKU
Posted Thursday 9th July 2015
NSPKU Statement on NHS England decision - Kuvan / BH4 / Sapropterin Many of you may be aware that NHS England has been considering a...Read More
Let Your Voice Be Heard
Posted Monday 15th June 2015
On Tuesday 16th June 2015 between 2.30pm and 4pm a debate will be taking place in Westminster Hall, House of Commons on “Access to...Read More

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