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Members Activities

Grandmother Di Palmer is walking 190 miles coast to coast to raise money for the NSPKU.  For more information and to sponsor her click here http://www.justgiving.com/dipalmer2

Paul Murphy is running the London 10K run in full firefighter's kit and breathing apparatus!  For more information and to sponsor him click here http://www.justgiving.com/donate-to-nspku

Lisa Sheridan and her partner plan on taking part in the Great Manchester Run in May 2009 to raise money for NSPKU see http://gmr.realbuzz.com/

If you are planning an event, please contact the webmaster and get it listed here. webmaster@nspku.org

Update on ACBS approval

Click here for the November 2007 ACBS update

     Click here to obtain the free software needed to read this file.

Cow and Gate Baby Food

Baby Balance Range

This new range of baby food cereals has been launched this week and the cereals contain milk powder.  Many of the new range have the same names as the old range eg Sunshine Banana Cereal.  The protein has increased from 2.6g/100g to 14.1g/100g.

Eleanor Weetch

Society Dietitian

London Marathon

Places for Runners

Believe or not it's only a few weeks until entry to the Flora London Marathon 2008 opens! On August 1, Marathon News, the magazine which contains the entry form to next year’s event, will be available in sports shops all over the country and be mailed to all entrants from the last five years. A list of stockists will be available on www.london-marathon.co.uk very soon.

If you wish to run, and have never run before, then order your Marathon News now!!!

Eric Lange NSPKU Secretary secretary@nspku.org

Marks and Spencers Chewing Gum

There are now 3 flavours of chewing gum which are sweetened with sucralose which are suitable and do not need to be counted for the PKU diet. I picked these packets up at the pay desk. 

Marks and Spencers are removing aspartame sweetened drinks from their range and replacing them with sucralose sweetened ones. That’s good news!

Sainsbury’s 6 Real Fruit Jam Tarts

These have been wrongly labeled as containing 0.1g protein for each jam tart. This is incorrect. They are 3.7gms per 100gms. Sainsbury’s are grateful for drawing their attention to this mistake and will be changing the label.

Just a word of warning about food labels. If you see something which looks too good to be true by having a much lower protein content than you would expect then it probably is not correct.  Please get in touch with Eleanor and she can check it out for you. dietitian@nspku.org

Ingredients are always listed with the main ingredient first and then listed in descending order. If there is an ingredient high up on the list which you normally do not take and the protein is unusually low it is likely there has been a mistake.

Join our email mailing list

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Telephone helpline changes

Please note that we are phasing out our 0845 telephone number and replacing it with the number below:

Calls to the old number will continue to be answered for some time.

We have also launched our 24 hour recorded information line that provides details of forthcoming events, contact details etc.  This is available on the number below:

Please update your records

Cooking4Fun Cookbook and DVD

This is available for only £10 from the Birmingham Childrens Hospital

For more details click here

Dietary Information

New on Prescription - FirstPlay Dietary Foods Ltd.  

This burger mix comes in sachets and each sachet provides 1 Exchange. You can make a very big burger for 1 exchange or 2 average-sized burgers which will be half an exchange each.  

Don’t just make burgers, you can make the mix into a sausage shape or into meat ball shapes.  The latter would be really nice in a free tomato-based sauce.  See page 16 in the purple booklet.  As the mix is dry it’s not very heavy so would be useful for travelling, visiting friends, BBQ school trips and so on.  

At the moment comes in original flavour.  You add water and simmer and have a good hot pudding which you can add raspberry jam to or serve with stewed fruit or tinned fruit.  You could also serve it cold with fruit on top or with a sweet sauce such as Tate and Lyle Saucy (except chocolate) or Silver Spoon Treat syrups- strawberry or maple or Rowse luxury strawberry or ginger sauce which is a bit more sophisticated!  A swirl of squirty cream ( Anchor  Aerosol Real Dairy Cream)100mls = ½ Exchange )could finish it off!

New on Prescription - SHS/Nutricia

This rice can be used in sweet and savoury  dishes.  SHS have produced a lovely recipe pack to go with the rice which can be added to their Low Protein Cookery File.  Ask your dietitian about how to obtain this.

Marks and Spencers

Good news for us.  Marks and Spencers have made the decision to change all their aspartame sweetened drinks over to sucralose.  This will take a little time but it will mean a much wider choice of drinks from this shop.  Sucralose is free of phenylalanine.

General Dietary Ltd

Ener-G Range Pasta:

Low Protein Lasagne

Low Protein Large Shells

Low Protein Small Shells

Low Protein Macaroni

Low Protein Spaghetti

All the above pastas have been discontinued by General Dietary Ltd. because of low demand for them.

SHS Snack Pots

These have been temporarily discontinued but they are expected back at the end of October / beginning of November 2006.

Lowprofin Crunch Bars

The following message has been sent to us by the manufacturers SHS:

Bars we are sorry to inform you that we will be unable to fulfill orders in

the short term.

We apologise for any inconvenience and we understand that this is frustrating as the

product has only been launched recently.

Blue Dragon Bean Thread Noodles

These noodles have now been discontinued.

Valpiform Biscuits and Savoury Bites

Ultrapharm Limited has taken over the distribution in the UK for the Valpiform low protein products.

Valpiform LP Savoury Bites 100g

Valpiform LP Cookies with Chocolate Nuggets 135g Valpiform LP Shortbread Biscuits 120g

The products are listed by most Wholesalers however if the retail Chemist is unable to obtain supplies please ask the Pharmacist to call our Customer Care Line 01491 578016. We will despatch the same day for next day delivery.

Marc Lewis CEO, Ultrapharm Ltd marc@gfdiet.com  www.gfdiet.com

Streaky Strips

These streaky strips which look like bacon have now been discontinued in the UK .

Letter received from Morning Star Farms  

We regret to inform you that Morning Star will no longer be able to produce the streaky strips and back bacon products.

These products have gained great acceptance among the English consumers and developed a strong and growing

business over the years.  However, we are not able to ensure our future ability to maintain GMO status in these products.

In compliance with our commitment to selling only GMO free products in the UK, we have discontinued production.

General Manager

Morning Star Farms

LOW PROTEIN RECIPE FILE

This super red recipe file produced by the West Midlands Support Group for PKU has recently been expanded and

contains yet more wonderful recipes. All the recipes have been thoroughly tried and tested.

Each recipe is on laminated, wipe clean sheets which can be removed from the file.

The cost of the file is £20 which includes postage and packing.  No profit is made on these sales.

If you would like a copy please complete this form and send a cheque made payable to BCH Charity Fund 333 050 for £20 and send to:

Dietetic Department,

Birmingham Children’s Hospital,

Steelhouse Lane,

Birmingham

B4 6NH

Don’t forget to include your postage details!

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Last modified: 16 July, 2008