General

Other news relating to PKU.
Genetic Alliance UK IFR Patient Experience Survey
Posted Wednesday 7th December 2016
SURVEY: PATIENT EXPERIENCES OF INDIVIDUAL FUNDING REQUESTS    Have you accessed KUVAN® (sapropterin...Read More
Job Vacancy - Society Dietitian (Paediatric)
Posted Monday 14th November 2016
The NSPKU has recently recruited a new Society Dietitian to support adult members of the society and we are now looking to recruit a...Read More
Exciting New Job Opportunity
Posted Friday 30th September 2016
The NSPKU is seeking to appoint an experienced Conference Organiser on a flat fee basis to organise its Annual Conference typically held...Read More
UK National Screening Committee Consultation
Posted Tuesday 13th September 2016
  The UK National Screening Committee (UK NSC) makes recommendations on all aspects of population screening. Now the UK NSC are...Read More
Cardiff University Research Study
Posted Friday 9th September 2016
Trainee Clinical Psychologist, Olivia Ambler, is recruiting parents of children with PKU (0-16) to carry out valuable research into...Read More
We're recruiting ...
Posted Tuesday 19th July 2016
Two self-employed posts are available; one adult dietitian and one paediatric dietitian. Please click on the link to read the full...Read More
Grant Fund
Posted Saturday 16th January 2016
We are pleased to announce a new grant fund for our members to be able to apply for assistance with Conference costs and other funding...Read More
Low Protein Calendar
Posted Wednesday 25th November 2015
Christmas is around the corner, and so we've prepared a list of low protein chocolate Christmas calanders which are available for...Read More
Webinar: Sapropterin Policy Decision
Posted Tuesday 8th September 2015
The NSPKU will be meeting with NHS England (NHSE) tomorrow (9th September) to discuss the recent decision by NHSE to not fund...Read More
ESPKU Competition
Posted Monday 3rd August 2015
Are you over the age of 18? Do you have PKU?? Would you like to attend the ESPKU Conference in Berlin??? If you answer yes...Read More

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