General

Other news relating to PKU.
PKU Funding Battle
Posted Tuesday 8th August 2017
Family wins High Court challenge over drug. A summary of the case, the result, the reasons for the court's decision and the...Read More
An Introduction to Phenylketonuria
Posted Friday 7th July 2017
Natasha Macmanard is a final year undergraduate student studying BSc Media Production at De Montfort University, Leicester. Natasha is...Read More
International PKU Day 2017 Presentation
Posted Monday 3rd July 2017
Following a successful event in Parliament the power point (below) provides a summary of the talks we presented to the MPs and invited...Read More
We Need Your Help
Posted Saturday 25th March 2017
Dear Member of Rare Disease UK We need your help. On Tuesday, MPs will meet in Parliament to debate the implementation of the UK...Read More
University of Leeds Research Study
Posted Saturday 25th March 2017
Postgraduate Researcher, Denise Hofman, from the University of Leeds is conducting an online study looking into adherence to diet and...Read More
LDA Telephone Market Research
Posted Wednesday 22nd March 2017
LDA Research are running a market research survey for carers of children with PKU on behalf of a nutrition company who are developing a...Read More
Children’s Dietetic Outpatients Service
Posted Thursday 26th January 2017
URGENT - Do you have anything to say about a Specialist Metabolic service potentially leaving the hospital and going into...Read More
News & Views 152
Posted Monday 9th January 2017
Did you receive your copy of News & Views issue 152 just before Christmas? If you are a member of the NSPKU and you did not...Read More
Genetic Alliance UK IFR Patient Experience Survey
Posted Wednesday 7th December 2016
SURVEY: PATIENT EXPERIENCES OF INDIVIDUAL FUNDING REQUESTS    Have you accessed KUVAN® (sapropterin...Read More
Job Vacancy - Society Dietitian (Paediatric)
Posted Monday 14th November 2016
The NSPKU has recently recruited a new Society Dietitian to support adult members of the society and we are now looking to recruit a...Read More

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