General

Other news relating to PKU.
Let Your Voice Be Heard
Posted Monday 15th June 2015
On Tuesday 16th June 2015 between 2.30pm and 4pm a debate will be taking place in Westminster Hall, House of Commons on “Access to...Read More
BH4/Kuvan Commissioning Policy
Posted Tuesday 14th April 2015
NHS England is currently considering a policy for the use of BH4 in children with PKU. BH4 is a chemical “helper” that...Read More
Telephone research
Posted Tuesday 4th November 2014
Clear Voice Medical Research, a market research firm based in Denver, Colorado. Working in coordination with Huron Consulting Group, are...Read More
Can we close the gap in PKU care?
Posted Tuesday 12th August 2014
Can we close the gaps in PKU care? A Report on the ESPKU delegates Croatia Meeting, on 29th March, Westin Hotel, Zagreb. The...Read More
Parent's Experience Study
Posted Wednesday 14th May 2014
  Are you willing to share your experience of being told your child had PKU?  A research study is being carried out by...Read More
News & Views Issue 144
Posted Sunday 15th December 2013
We love keeping in touch with our membership and pride ourselves on providing the best service we can. If you haven't received...Read More
Sponsorship for ESPKU 2013 Available
Posted Tuesday 23rd July 2013
The NSPKU is looking to sponsor an individual to go to the 27th E.S.PKU Meeting in Antwerp from the 31st October to 3rd November...Read More
London Marathon 2014 Opportunity
Posted Tuesday 23rd July 2013
Attention all you mad-cap marathon runners or anyone running for the first time! The NSPKU has secured one place in the London...Read More
Telephone Helpline Changes
Posted Sunday 13th January 2013
Please note that we are phasing out our 0208 telephone number and replacing it with the number below: 030 3040 1090...Read More
Society Dietitian Announced
Posted Saturday 10th November 2012
The NSPKU has announced that Paula Hallam will take over as their dietitian next year. The National Society for Phenylketonuria (NSPKU)...Read More

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