General

Other news relating to PKU.
We Need Your Help
Posted Saturday 25th March 2017
Dear Member of Rare Disease UK We need your help. On Tuesday, MPs will meet in Parliament to debate the implementation of the UK...Read More
University of Leeds Research Study
Posted Saturday 25th March 2017
Postgraduate Researcher, Denise Hofman, from the University of Leeds is conducting an online study looking into adherence to diet and...Read More
LDA Telephone Market Research
Posted Wednesday 22nd March 2017
LDA Research are running a market research survey for carers of children with PKU on behalf of a nutrition company who are developing a...Read More
Children’s Dietetic Outpatients Service
Posted Thursday 26th January 2017
URGENT - Do you have anything to say about a Specialist Metabolic service potentially leaving the hospital and going into...Read More
News & Views 152
Posted Monday 9th January 2017
Did you receive your copy of News & Views issue 152 just before Christmas? If you are a member of the NSPKU and you did not...Read More
Genetic Alliance UK IFR Patient Experience Survey
Posted Wednesday 7th December 2016
SURVEY: PATIENT EXPERIENCES OF INDIVIDUAL FUNDING REQUESTS    Have you accessed KUVAN® (sapropterin...Read More
Job Vacancy - Society Dietitian (Paediatric)
Posted Monday 14th November 2016
The NSPKU has recently recruited a new Society Dietitian to support adult members of the society and we are now looking to recruit a...Read More
Exciting New Job Opportunity
Posted Friday 30th September 2016
The NSPKU is seeking to appoint an experienced Conference Organiser on a flat fee basis to organise its Annual Conference typically held...Read More
UK National Screening Committee Consultation
Posted Tuesday 13th September 2016
  The UK National Screening Committee (UK NSC) makes recommendations on all aspects of population screening. Now the UK NSC are...Read More
Cardiff University Research Study
Posted Friday 9th September 2016
Trainee Clinical Psychologist, Olivia Ambler, is recruiting parents of children with PKU (0-16) to carry out valuable research into...Read More

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