General

Other news relating to PKU.
UK National Screening Committee Consultation
Posted Tuesday 13th September 2016
  The UK National Screening Committee (UK NSC) makes recommendations on all aspects of population screening. Now the UK NSC are...Read More
Cardiff University Research Study
Posted Friday 9th September 2016
Trainee Clinical Psychologist, Olivia Ambler, is recruiting parents of children with PKU (0-16) to carry out valuable research into...Read More
We're recruiting ...
Posted Tuesday 19th July 2016
Two self-employed posts are available; one adult dietitian and one paediatric dietitian. Please click on the link to read the full...Read More
Grant Fund
Posted Saturday 16th January 2016
We are pleased to announce a new grant fund for our members to be able to apply for assistance with Conference costs and other funding...Read More
Low Protein Calendar
Posted Wednesday 25th November 2015
Christmas is around the corner, and so we've prepared a list of low protein chocolate Christmas calanders which are available for...Read More
Webinar: Sapropterin Policy Decision
Posted Tuesday 8th September 2015
The NSPKU will be meeting with NHS England (NHSE) tomorrow (9th September) to discuss the recent decision by NHSE to not fund...Read More
ESPKU Competition
Posted Monday 3rd August 2015
Are you over the age of 18? Do you have PKU?? Would you like to attend the ESPKU Conference in Berlin??? If you answer yes...Read More
The NSPKU is looking for a News & Views Editor and Copywriter
Posted Monday 3rd August 2015
Please see advert for further information on these voluntary vacancies. Read More
NHS England decision on Kuvan/Sapropterin for PKU
Posted Thursday 9th July 2015
NSPKU Statement on NHS England decision - Kuvan / BH4 / Sapropterin Many of you may be aware that NHS England has been considering a...Read More
Let Your Voice Be Heard
Posted Monday 15th June 2015
On Tuesday 16th June 2015 between 2.30pm and 4pm a debate will be taking place in Westminster Hall, House of Commons on “Access to...Read More

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