General
Other news relating to PKU.
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NSPKU Survey... the results Posted Thursday 25th October 2018
The first peer reviewed paper reporting the results of the NSPKU survey findings for children and adults with PKU has now been...Read More |
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How do you see the future in terms of treatment for PKU? Posted Monday 8th October 2018
Dietitian and PKU Guidelines Co-ordinator, Annemiek Van Wegberg from The Netherlands, has produced a European questionnaire looking at...Read More |
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NSPKU statement on NHS England draft interim Kuvan policy Posted Tuesday 2nd October 2018
NHS England has prepared a draft interim policy for the use of sapropterin (Kuvan) for PKU. The policy is likely to be considered by NHS...Read More |
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The legacy of Professor Horst Bickel Posted Monday 3rd September 2018
A life of courage for lives with hope.
The legacy of Professor Horst Bickel.
The past, present and future of PKU...Read More |
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NSPKU statement on the use of Kuvan in Scotland Posted Monday 13th August 2018
The Scottish Medicines Consortium (SMC) has today announced that they have rejected the submission for the routine funding of Kuvan in...Read More |
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NSPKU statement on NHS England Kuvan policy Posted Saturday 11th August 2018
The NSPKU have recently been informed by NHS England that it will develop a policy for using Kuvan (sapropterin) with the intention that...Read More |
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PKU in the news... Posted Thursday 2nd August 2018
Link to article by journalist Sara Royle in The Westmorland Gazette - August...Read More |
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New NSPKU Research Grants Posted Tuesday 17th July 2018
On International PKU Day 2018 the NSPKU were proud to announce the winners of the two new research grants. The NSPKU was overwhelmed by...Read More |
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PKU in the news! Posted Thursday 28th June 2018
Sky News today by reporter David...Read More |
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NSPKU Statement on Pegvaliase and Kuvan Posted Thursday 21st June 2018
Pegvaliase is an investigational enzyme substitution therapy for the treatment of PKU, which has been developed by BioMarin...Read More |
