General

Other news relating to PKU.
Society Dietitian Announced
Posted Saturday 10th November 2012
The NSPKU has announced that Paula Hallam will take over as their dietitian next year. The National Society for Phenylketonuria (NSPKU)...Read More
Untreated PKU Trial Follow-up
Posted Saturday 14th July 2012
Adults with late diagnosed PKU and severe challenging behaviour: a randomised placebo-controlled trial of phenylalanine-restricted...Read More
PKU to be featured in The Independent
Posted Thursday 23rd February 2012
On Wednesday 29th February The Independent will include a 16 page supplement to mark the fifth annual Rare Disease Day, with PKU being...Read More
NSPKU Launches new website and logo
Posted Monday 13th February 2012
Following a revamp, the society's new website launched today. A new logo was also unveiled to coincide with the launch. Please...Read More
Kuvan® debated in Parliament
From our archive
Conservative MP for Spelthorne, Kwasi Kwarteng raised the issue of funding for Kuvan® under the NHS today in Parliament on behalf of a...Read More
Telephone helpline changes
From our archive
Please note that we are phasing out our 0845 telephone number and replacing it with the number below: 0208 364 3010...Read More

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