Call For Action: 6 key demands for change

Following a very successful awareness event in Parliament on International PKU Day 2017 the NSPKU would like to build on the support offered by the MPs that attended by writing to all our MPs again with details of the NSPKU's Call for Action: 6 key demands for change. Please personalise and change these template letters to describe your own issues with PKU. Do you have problems with your prescriptions or are you being denied BH4 (Kuvan) when you would like to try it - whatever your concerns are please write about them in your letter. You could also follow up your letter with an email or perhaps arrange to meet your MP in his or her surgery. Please also encourage aunts, uncles, grandmas and grandpas to write to their MP too!

Template - Did attend

Please use this template letter if your MP is listed below and did attend the event ...

  1. Peter Aldous MP – Waveney
  2. Hannah Bardell MP – Livingston
  3. Jo Churchill MP – Bury St Edmonds
  4. Simon Clarke MP – Middlesbrough Sth & East Cleveland
  5. Kate Hollern MP – Blackburn
  6. Baroness Janke
  7. Seema Kennedy MP – South Ribble
  8. Catherine Mckinnell MP – Newcastle upon Tyne North
  9. Jeremy Quin MP – Horsham
  10. Marie Rimmer MP – St Helens South & Whiston
  11. Liz Saville Roberts MP – Dwyfor Meirionnydd
  12. Iain Stewart MP – Milton Keynes South
  13. Liz Twist MP – Blaydon
  14. Catherine West MP – Hornsey & Wood Green

Template - Did not attend

Or this template letter for those that weren't able to make it.

Please don't forget to include the Call for Action, below.