General Debate on NICE Appraisal Processes for Treatments for Rare Diseases

A two hour Backbench Business debate took place on Thursday 14th March 2019 in the House of Commons led by the chair of the All Party Parliamentary Group for PKU, Liz Twist MP.

MPs debated the National Centre for Clinical Excellence (NICE) appraisal processes for the treatment of rare diseases like PKU, muscular dystrophy and cystic fibrosis.

Please click on the link to watch the full debate...