New NSPKU Research Grants

On International PKU Day 2018 the NSPKU were proud to announce the winners of the two new research grants. The NSPKU was overwhelmed by the response from the PKU research community and received many high quality applications for these two new £10,000 awards.

Following a rigorous two tiered judging process by the NSPKU Medical Advisory Panel and the NSPKU’s Senior Officers the first award went to lead applicant, Dietetic Researcher, Alex Pinto, along with Senior Specialist Dietitian, Anne Daly and Research Dietitian Sharon Evans from Birmingham Children’s Hospital. The team were delighted to receive one of the £10,000 awards for their study on the Impact of Fruit and Vegetables on Metabolic Control in Patients with PKU. Alex Pinto said “This is a practical, cost effective study that will bring benefit to all people with PKU following a very restrictive diet, both within the UK, and throughout the world”.

The second £10,000 grant was awarded to lead applicant Prof Dr Francjan van Spronsen and his team; Kimber van Vliet and Wiggert van Ginkel both MD/PhD students based at the Beatrix Children’s Hospital in Groningen, Netherlands. Prof Dr van Spronsen’s team will be investigating A New Home Monitoring Device for Measuring Phenylalanine in Patients with Phenylketonuria and Tyrosinemia Type 1. Prof Dr van Spronsen said “With this study we aim to investigate whether this new home monitoring device can be implemented in regular patient care. If patients can monitor their phenylalanine concentrations at home without interference of a laboratory, we expect patient care to improve.”

Both lead applicants will be invited to present their interim results at the next NSPKU conference in 2019.