NSPKU statement on NHS England draft interim Kuvan policy

NHS England has prepared a draft interim policy for the use of sapropterin (Kuvan) for PKU. The policy is likely to be considered by NHS England in November. The policy proposes using Kuvan in adults and children in England of all ages in patients who are responsive to treatment. The NSPKU is providing comments as part of "stakeholder consultation" and there will be no wider public consultation. There is no guarantee that the policy will be approved by NHS England. The NSPKU will support the proposed policy.

2nd October 2018