PKU Funding Battle

Family wins High Court challenge over drug.

A summary of the case, the result, the reasons for the court's decision and the implications of this court decision for people with PKU can be found in the briefing notes (below) provided by family lawyer Peter Todd.

 

Please click on this link for the NSPKU press release... http://www.pressat.co.uk/releases/high-court-rules-that-nhs-acted-irrationally-in-refusing-life-changing-drug-kuvan-to-child-with-rare-disease-pku-13faa06b96bd80b06782a9c37f0bccc2/#.WYmiDGOXD_U.email

Please click on these links to see the NSPKU in the news...

http://www.bbc.co.uk/news/uk-40862045

http://www.dailymail.co.uk/wires/pa/article-4770936/Parents-boy-rare-condition-win-High-Court-battle-drug.html

http://metro.co.uk/2017/08/08/boy-7-could-get-life-changing-treatment-after-judge-orders-nhs-to-reconsider-funding-6836742/

http://www.dailymail.co.uk/news/article-4770938/Parents-autistic-boy-7-win-second-chance-drug.html

Related