Westminster Hall Debate

Access to treatment, support and innovative new medicines for phenylketonuria patients was debated in the House of Commons on Tuesday 26th June 2018.

Liz Twist MP, Chair of the All Party Parliamentary Group for PKU applied for the debate via a ballot arranged by the Speaker’s Office. Westminster Hall debates give MPs an opportunity to raise local or national issues and receive a response from a government minister.

The briefing notes for the Westminster Hall debate can be found below. This includes information from our survey of the PKU community; PKU can have a diverse impact upon individuals and families – some people struggle more than others. Our priority is to ensure that everyone has the opportunity of meeting their fullest potential in life.

Watch the full 90 minute debate here on Parliament TV...


And a condensed 11 minute version is available on the NSPKU YouTube channel...