News

Dietary Information

Announcements relating to dietary products.

Events

Upcoming events from the society and its friends

Publications

News about new and updated publications

General

Other news relating to PKU.
How do you see the future in terms of treatment for PKU?
Posted Monday 8th October 2018
Dietitian and PKU Guidelines Co-ordinator, Annemiek Van Wegberg from The Netherlands, has produced a European questionnaire looking at...Read More
NSPKU statement on NHS England draft interim Kuvan policy
Posted Tuesday 2nd October 2018
NHS England has prepared a draft interim policy for the use of sapropterin (Kuvan) for PKU. The policy is likely to be considered by NHS...Read More
32nd ESPKU Conference, November 2018
Posted Tuesday 11th September 2018
Hosted by one of it’s member countries the ESPKU Annual Conference is the largest event of the year combining three different...Read More
The legacy of Professor Horst Bickel
Posted Monday 3rd September 2018
A life of courage for lives with hope. The legacy of Professor Horst Bickel. The past, present and future of PKU...Read More
NSPKU statement on the use of Kuvan in Scotland
Posted Monday 13th August 2018
The Scottish Medicines Consortium (SMC) has today announced that they have rejected the submission for the routine funding of Kuvan in...Read More
NSPKU statement on NHS England Kuvan policy
Posted Saturday 11th August 2018
The NSPKU have recently been informed by NHS England that it will develop a policy for using Kuvan (sapropterin) with the intention that...Read More
PKU in the news...
Posted Thursday 2nd August 2018
Link to article by journalist Sara Royle in The Westmorland Gazette - August...Read More
New NSPKU Research Grants
Posted Tuesday 17th July 2018
On International PKU Day 2018 the NSPKU were proud to announce the winners of the two new research grants. The NSPKU was overwhelmed by...Read More
Discontinued Mevalia products
Posted Friday 6th July 2018
Disappointing news from Mevalia regarding the decision to discontinue seven of their low protein products... Choco Chips / PIP code...Read More
PKU in the news!
Posted Thursday 28th June 2018
Sky News today by reporter David...Read More

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