News

Dietary Information

Announcements relating to dietary products.

Events

Upcoming events from the society and its friends

Publications

News about new and updated publications

General

Other news relating to PKU.
NSPKU Launch New Research Grants
Posted Friday 23rd March 2018
At the 45th Annual Conference 2018 the NSPKU were pleased to announce the launch of two new research grants worth £10,000 each....Read More
Parliamentary debate calls for an end to the deadlock in failure to provide drug treatment for the rare disease PKU
Posted Thursday 22nd March 2018
Press release issued Thursday 22nd March 2018. Vicky Ford MP (Chelmsford, Conservative) spoke at an adjournment debate in Parliament...Read More
Statement to NSPKU members regarding the appraisal of Kuvan by NHS England
Posted Thursday 15th March 2018
In summer 2017 NHS England stated that the policy decision to not provide Kuvan treatment would be reconsidered. Subsequently a...Read More
Spring Draw Winners
Posted Thursday 8th March 2018
Thank you to everyone who sold raffle tickets for the NSPKU's annual Spring Draw. Special thanks go to Linda Dale who sold an...Read More
New All Party Parliamentary Group launched to bring political attention to the rare disease PKU
Posted Thursday 8th March 2018
A press release from the NSPKU has been published and can be viewed here..  ...Read More
Last Chance - Conference 2018 Discount
Posted Tuesday 26th December 2017
There's only a short time left for the Early Bird Discount of 10% off all Conference 2018 places, book before 31st December 2017 to...Read More
A Fair Deal for People with PKU in Scotland
Posted Tuesday 12th December 2017
BioMarin's plan to submit a proposal to the Scottish Medicine Consortium (SMC) re Kuvan is likely to be submitted in February...Read More
Christmas 2017: Low Protein Goodies
Posted Sunday 3rd December 2017
A comphrensive list of sweets and treats available this year in the shops and supermarkets.   Read More
IRN-BRU Product Alert!
Posted Monday 13th November 2017
From January 2018 regular IRN-BRU will be blended with a mix of low calorie sweeteners including aspartame, a source of...Read More
NSPKU Survey - Your experience of PKU
Posted Thursday 9th November 2017
SURVEY CLOSING SOON! PLEASE COMPLETE... What is this survey for? We would like you to complete a survey about living with...Read More

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