This page contains resources metabolic dietitians working with patients with PKU.

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Consensus guidelines on food labelling interpretation and allocation of protein/Phe exchanges for PKU.

The purpose of these guidelines is to harmonise dietary advice for all people with PKU across the UK, both children and adults.  Sixteen consensus statements have been agreed by the BIMDG dietitians group and endorsed by the NSPKU. These guidance statements are suitable for all people with PKU, although further guidance for maternal PKU patients who require stringent dietary guidance is in the process of being developed.

https://nspku.org/publications/publication/guidance-statements-low-protein-labelling-interpretation-and-allocation

 Other resources…