LES MEILLEURS SITES SUR LA PCU ( PHENYLCETONURIE ) par Pierre Maurel (France)

PAYS  COUNTRY

ADRESSE DU SITE WEB ADRESS WEBSITE

WEBMESTRE    WEBMASTER  

 SUJET    SUBJECT

AMERIQUES  AMERICAS

ARGENTINE

http://www.pku.org.ar/

Bienvenido a la página web Argentina de FENILCETONURIA

ARGENTINE

http://www.telenocheinvestiga.com/notas/01-11-00/clasico/nota2.asp

"Telenoche Investiga. El programa" de María Laura Santillán et Juan Miceli

ARGENTINE

http://www.medynet.com/usuarios/PrevInfad/Hipotiroidismo.htm

José Galbe Sánchez-Ventura

BRESIL

http://www.afeh.org.br/

AFEH-PR : Associaçao dos fenilcetonùricos e homocistinùric. do Parana

BRESIL

http://www.fenilcetonuria.com.br/

Site de Harim e Claudia Vicente de Souza parents de Guilherme PCU

BRESIL

http://www.nib.unicamp.br/fenilbrasil/

http://www.nib.unicamp.br/fenilbrasil/vocepku.htm

Associação de Pais e Amigos de Portadores de Fenilcetonúria do Estado de São Paulo (APAF)

BRESIL

http://www.vittafix.com.br/

Empresa alimentícia voltada totalmente para produtos de dietas especiais, em particular, fenilcetonúria

CANADA Alberta

http://communities.msn.ca/PKUworld

http://groups.msn.com/PKUworld

Ciaara Christante mère de Zackery PCU classique 2 ans½ Edmonton

c_christante@hotmail.com or czchristante@shaw.ca

Canada Col. Britan.

http://www3.telus.net/webeyond/mcleans/

Site perso d’Andrew McLean, PCU 32 ans Canada Colombie-Britann.

Canada Col. Britan.

www.pkuadults.com

Andrew McLean 32ans PCU de Surrey (Colombie Britannique Canada)

CANADA Ontario

http://www.sickkids.on.ca/kids/kidlink/

The Hospital for Sick Children Toronto
CANADA Ontario

http://www.geocities.com/tcbpku/

Global Pku Portal de Maria Jouikova PCU 20ans Ryerson Polyetchnique Université Toronto

Canada Quebec

http://metabolique.com/

AQMMR

CANADA

http://www.csmd.ca/

The Canadian Society for Metabolic Disease

CANADA

http://ww2.mcgill.ca/pahdb/handout/handout.htm

Hyperphenylalaninemia (PKU) Resource Booklet for Families

CANADA

http://www.pahdb.mcgill.ca/

Informations sur les MUTATIONS du GENE de la Phenylalanine Hydroxylase

CANADA

http://www.nald.ca/CLR/nowiknow/page156.htm

My Story About PKU (Phenylketonuria) by Julie McMullin

CANADA

http://www.genetests.org/query?dz=pku

Shannon Ryan; Montreal Children's Hospital
Charles R Scriver, MD; McGill University

CANADA

http://www3.sympatico.ca/tammy_roger/Jennastory.htm

http://www3.sympatico.ca/tammy_roger/index.htm

MCAD:  http://www.emedicine.com/ped/topic1392.htm

Tammy & Roger Clark : « Jenna Florence Clark »

MCAD: Medium-Chain Acyl-CoA Dehydrogenase Deficiency

CHILI- CHILE

http://diagnostico.canal13.cl/cgi-bin/link.exe/Faqs/Alimentacion

¿Qué es fenilcetonuria? : Dra. Verónica Cornejo, Coordinadora Técnica Programa Fenilcetonuria Unidad de Genética y Enfermedades Metabólicas Instituto de Nutrición y Tecnologia de los Alimentos.

CHILI- CHILE

http://www.hsmq.cl/organigr/pku_fen.htm

http://www.hsmq.cl/organigr/pediatra.htm#Programas%20Especiales

Hospital San Martín de Quillota

CHILI- CHILE

http://www.sociedadmedicallanquihue.cl/neonatologia/programasneonatales/indicefenilhipotiroidismo.htm

PROGRAMAS DE BUSQUEDA MASIVA  DE FENILQUETONURIA

HOSPITAL PUERTO MONTT

MEXIQUE

http://www.salud.edu.mx/fenilcet.shtml

Instituto Nacional de la Nutrición Salvador Zubirán : Información elaborada por: Dr. Osvaldo Mutchinick B. Departamento de Genética

MEXIQUE

http://www.imbiomed.com.mx/Innsz/Nnv53n6/espanol/Wnn016-12.html

Pearl S. Buck y la fenilcetonuria

MEXIQUE

http://www.medweb.com.mx/fenilcetonuria.tpl

Medi Web

USA-California

http://home.san.rr.com/brenneises/

Bob et Ally Brenneise parents :Tyler, autisme cpku diagn. tardif et Stephen, Syndr.Asperger

USA California

USA Massachusets

http://www.pkuparents.org/

http://www.pkuparents.org/news_page.htm

The PKU Parents of California Website Présidente : Mary Mercurio

LOW PROTEIN EASTER CANDY 2003 de John and Dianne Sullivan

USA-Arizona

http://www.medhelp.org/lib/pku.htm

St Joseph's Medical Center Phoenix

USA California

http://www.pkunetwork.org/

CPN  Chidren’s Pku Network

USA-Connecticut

http://www.canr.uconn.edu/nusci/outrch/specneed.html

CHILDREN WITH SPECIAL NEEDS

USA Florida

http://home1.gte.net/magol/

http://mysite.verizon.net/magol/index.htm

Marsha Magol de Tampa (Floride), mère de Jeffrey PCU 13 ans

USA-Georgia

http://www.emory.edu/WHSC/HSNEWS/releases/june02/metabolic_camp.html

The Metabolic Camp at Emory University

USA Hawai

http://www.ess.sunysb.edu/tracy/penpals.html

WebSite du Docteur Tracy beck Pcu cl. 29 ans Astronome Hilo, Hawaï

USA Illinois

http://www.pkuil.org/       http://www.pkuil.org/understand.htm

Organisation PCU de l’Illinois

USA-Louisiane

http://www.lsuhsc.edu/no/centers/genetics/hereditaryhealing/article_pregnancy_PKU.htm

Hereditary Healing  A Public Service of The Center for Acadiana Genetics and Hereditary Health Care (CAGHHC)

USA Massachusets

http://www.pku-allieddisorders.org/

National Coalition of Pku and Allied Disorders de Trish Mullaley

USA-Michigan

http://www.michigan-pku.org/

Website of Sandy La Prad mom to Bethany cpku

USA Minnesota

http://www.peds.umn.edu/pku/

A Place of Our Own University Minnesota Pku Prog.et Pku Foundation

USA-Montana

http://www.savebabies.org/     http://www.savebabies.org/states/montana.htm

http://www.savebabies.org/states/montana.htm

http://www.dphhs.state.mt.us/hpsd/pubheal/healsafe/famheal/newborn/

Save Babies Through Screening
and Newborn Screening in Montana

USA-Pku Nebraska

http://www.hhs.state.ne.us/nsp/Newborn4.htm

http://www.hhs.state.ne.us/nsp/pmpku.htm

The Nebraska Department of Health & Human Services has contracted with the University of Nebraska Medical Center in Omaha (402) 559-7350 to provide formula, and medical, nutritional and consultative services to all PKU affected individuals born in Nebraska.

USA - New England

http://www.necpad.org

The New England Connection for PKU and Allied Disorders 5 Jones Lane East Sandwich, MA 02537 (508) 888-2295

USA - New England

http://web1.tch.harvard.edu/newenglandconsortium/RMWebsite/PKUGuide/PKUGuide.htm

A QUICK GUIDE to PKU  Children's Hospital Boston Massachusets

USA - New Hampshire

http://www.parenttoparentnh.org/ezhomepg/userpages/wintery.html

http://proteacher.net/archive/posts/2001/01/25/12599.html

Becky mom of 4 sons pku   jimmysmom_2000@yahoo.com

USA New Jersey

http://noblemen.20m.com/persdenniscarlson.html

DENNIS CARLSON (alias "Den Carlberg")

USA New Mexico

http://www.sikhnet.com/nmpku/nmpku.nsf/homepage

L’Organisation PCU du Nouveau-Mexique Presid./Webm. Sat Guru Singh Khalsa cpku 25y/o

USA New Mexico

http://sld.state.nm.us/nms/

http://sld.state.nm.us/nms/pkugroup.htm

Website designed and updated by Danny Gray

USA - New York

http://www.pbs.org/fredfriendly/whocares/your_stories/becky_shively.html

Becky Shively de Niagara Falls, New York

USA North Texas

http://www.ntxpku.org/

L’Association PCU du Texas du Nord

USA-Pennsylvanie

http://members.tripod.com/kickbutt162000/index.htm

People     Website de Josh 18 ans GA1 Glutaric Aiduria Type 1

USA Pennsylvanie

http://www.pkumac.org/

MACPAD Mid-Atlantic Connection for PKU and Allied Disorders  Président : Judy Griffith

USA Pennsylvanie

http://www.pkulife.com/default.asp

Your source for PKU Software and Products

USA -Tennessee

http://www.geocities.com/PKU_Kids/FunDay.html

Jennifer Jenkins

USA-Texas

http://www.tdh.state.tx.us/newborn/pku.htm

http://www.tdh.state.tx.us/newborn/new_pku3.htm

http://www.tdh.state.tx.us/newborn/new_pku7.htm

Newborn Screening Case Management Program

USA-Vermont

http://www.interscientific.com/prod_pku.htm

http://www.interscientific.com/home.htm

IS   NEONATAL SCREENING TEST KIT

USA -Vermont

http://www.partoparvt.org/vv.html

TREVOR MERCHANT PKU  10 years old

USA-Virginie

http://www.kuntrynet.com/users/ddraig/

The PKU Diet Sheet Creator (PKUDSC) software d’Owen Morgan

USA Washington

http://www.pkunews.org/          http://www.wisc.edu/wisconsinpress/books/0407.htm          

National PKU News de Virginia Schuett diététicienne de Seattle

USA Washington

http://depts.washington.edu/pku/

University of Washington  PKU Clinic Seattle

USA - West Virginia

http://www.angelfire.com/me4/toni_michells_page/

http://www.angelfire.com/me4/toni_michells_page/tonimichell.html

http://www.fesoc.com/pku/        http://www.angelfire.com/ky3/tonilovesadonai/pku.html

James,24 years old and Toni Kendall, 24 years old, wife to James / PKU
Jackie Baty 22y cpku Malden, Massachusetts et Toni Kendall 24y Pku Virginie occidentale USA

PKU BASICS on the Net Jackie Baty And Toni Kendall Go Through These

USA - Wisconsin

http://www.familyvillage.wisc.edu/lib_pku.htm

by rowley@waisman.wisc.edu

USA Wisconsin

http://www.ameritech.net/users/hardys/pkunewsfromwisconsin.htm

PKU News From Wisconsin  Crééé par Michelle Hardy

USA Wisconsin

http://www.ameritech.net/users/hardys/stories.htm

Crééé par Michelle Hardy

USA

http://www.pkuperspectives.com/

USA PKU Perspectives' Mission Karen Aland de Pleasant Grove  Utah

USA

http://www.geocities.com/guamprayerconnection/annespage.html

http://www.geocities.com/guamprayerconnection/calebspage.html

Website d’Anne (PCU) et Brian Fjeld-Kirsten de Guam, parents de Caleb

USA

http://photos.yahoo.com/bc/annekirsten2000/

Anne's Yahoo Photo Albums –Anne (Pcu), Brian, Caleb Fjeld-Kirsten

USA

http://www.geocities.com/ridakm/About-Dan.html

http://www.geocities.com/ridakm/index.html

Dan's Story  Jan and Dicks website  Very beautiful website !!

USA

http://pkuandmore.tripod.com/

Website de Rosalind Jessica Voelker

USA

http://www-ni.beth.k12.pa.us/news/authors/buck/buck.htm

Carol née en 1921, fille de la célèbre écrivain américaine Pearl S. Buck était PKU

USA

http://www.vineland.org/history/trainingschool/people/buck.htm

Carol née en 1921, fille de Pearl Sydenstricker-Buck et de John Lossing Buck était PKU

USA

http://nicollsadc.com/pku/    http://nicollsadc.com/pku/SupportGroups/

WebSite Pku Global Discussion Forum de Scott, Erin, Brandon et Anthony Nicolls

USA

http://dawnsville.tripod.com/

DAWNSVILLE  de Dawn Estle   Zak  PKU

USA

http://members.tripod.com/kickbutt162000/id20.htm

PKU testing page

USA

http://medweb.pc.edu/students/med2002/thompso1/index.html

Carl Thompson's Web Page of Phenylketonuria (PKU)

USA

http://pbl.cc.gatech.edu/mindy/711

Seth Lilavivat, Greg Forlenza, Heather Yi

USA

http://www.babiesonline.com/babies/b/balthazar/

Alexander's web page   Alexander Mendel is cpku -13 months old

USA

http://www.family.org/fofmag/pf/a0019908.html

Dr James DOBSON and PKU

USA

http://www.image.tcu.edu/01december/pku.html

http://web47.radiant.net/~pkunews/guthrie/winners2.htm

Erin LaMourie, 19 years, Lenexa, KANSAS

USA

http://www.geocities.com/PKU_Kids/FunDay.html

PKU KIDS FUN DAY !  PKU_Kids@yahoo.com

USA

http://www.aafp.org/afp/991001ap/1462.html

http://www.prevention-news.com/1998/marapr98/b8koch.htm

http://www-rcf.usc.edu/~rkoch/

http://www.scdd.ca.gov/programs_projects/Default.htm

Issues in Newborn Screening for Phenylketonuria by RICHARD K. KOCH, M.D. University of Southern California School of Medicine, Los Angeles, California

USA

http://www.nd.edu/~ljordan/butterfly/genetics/pku.ppt

PHENYLKETONURIA PKU at a Glance  Diaporama

USA

http://www.geocities.com/jkelly7112/

http://web47.radiant.net/~pkunews/personal/travel10.htm

The Kelly Family  Julie Kelly PKU  from Albuquerque, New Mexico

USA

http://www.lowprotein.com/

lopro@webuniverse.net    lopro@relaypoint.net

USA

http://www.ctispregnancy.org/pdf/pku.pdf

Doc Pdf  MATERNAL PKU

USA

http://www.marchofdimes.com/professionals/681_1219.asp

Information specialists at the March of Dimes

USA

http://www.moondragon.org/lab/maternalpku.html

MoonDragon's Lab Information & Tests Maternal PKU

USA

http://www.nucdf.org/nbs_pin_project.htm

NUCDF's webpage Newborn Screening PIN PROJECT

USA

http://www.davidicke.net/medicalarchives/effects/pku.html

David Icke’s Medical Archives

USA

http://www.umassmed.edu/nbs/

http://sld.state.nm.us/nms/

The New England Newborn Screening Program

New Mexico is a member of the Mountain States Regional Genetic Services Network (MSRGSN)

USA

http://www.keepkidshealthy.com/newborn/newbornscreening.html

Newborn screening Tests

USA

http://www.rarediseases.org/

The NORD: National Organization of Rares Disorders

USA

http://www.pbs.org/fredfriendly/whocares/your_stories/becky_shively.html

Becky Shively Niagara Falls, NY

USA

http://www.astoria-pacific.com/appku.php3

The Astoria-Pacific SPOTCHECK® Phenylalanine test

USA

http://srv2.lycoming.edu/~newman/courses/bio22298/disorderpapers/Pku/preliminary.htm

What is Phenylketonuria, and how is it treated?

USA

http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/P/Phenylketonuria.html

Kimball's Biology Pages       Phenylketonuria (PKU)

USA

http://www.nhgri.nih.gov/ELSI/TFGT_final/appendix5.html

The History of Newborn Phenylketonuria Screening in The U.S. by Diane B. Paul

USA

http://www.hollandandbarrett.com/Concern/Phenylketonuria.htm

Phenylketonuria

USA

http://www.keepkidshealthy.com/welcome/conditions/phenylketonuria.html

Phenylketonuria by Barb Durso, MD

USA

http://www.medformation.com/mf/mm_qdis.nsf/qd/nd0346g.htm

Medformation .com  PHENYLKETONURIA IN CHILDREN

USA

http://phenylketonuria.org/pku/

http://pku.raredisease.org

Family Support Message Board de Danny Carlton

This board is for people and familes with PKU

USA

http://www.yourgenesyourhealth.org/ygyh/mason/ygyh.html?syndrome=pku

Your Genes your Health funded by Josiah Macy,Jr Foundation

USA

http://groups.yahoo.com/group/pkuadults/

Group Discussion Pku Adults : Share ideas with other adults who have PKU

Post message : pkuadults@yahoogroups.com

Subscribe : pkuadults-subscribe@yahoogroups.com

USA

http://medweb.pc.edu/students/med2002/thompso1/index.html

Carl Thompson's Web Page of  Phenylketonuria (PKU)  thompso1@pc.edu

USA

http://jhhs.client.web-health.com/web-health/topics/GeneralHealth/generalhealthsub/generalhealth/genetic_disorders/pku_retard.html

PKU (phenylketonuria) can lead to mental retardation

USA

http://www.soxkat.com/~shane/index.htm

Phenylketonuria     pku@come.to

USA

http://www.uic.edu/classes/phar/phar332/Clinical_Cases/aa%20metab%20cases/PKU%20Cases/PKU%20intro.htm

PHAR 332

USA

http://www.babiesonline.com/babies/d/dakota/

Roy and Kandy Frederick : Dakota, Rose Frederick pku born 5/2/2001

USA

http://pbl.cc.gatech.edu/mindy/860

http://pbl.cc.gatech.edu/mindy/711

PKU: Prognosis and Incidence Rate

USA

http://www.counsel.neu.edu/Information%20for%20Parents/Brief%20Articles/%23451074

Phenylketonuria (PKU) - Information for Parents

USA

http://www.chem.ucla.edu/~alice/Chemistry/dept/Faculty/pku.html

University of California, Los Angeles : Molecular Basis of PKU

USA

http://pub11.ezboard.com/fgentlechristianmothersfrm5.showMessage?topicID=312.topic

Gentle Christian Mothers Message Board

USA

http://www.drgreene.com/21_691.html

http://www.drgreene.com/21_1156.html

Dr Greene.com

USA

http://members.tripod.com/kickbutt162000/id20.htm

PEOPLE : PKU testing page

USA

http://www.midwifemama.com/pku.html

Newborn Procedures  Circle of Life Midwifery

USA

http://www.aafp.org/afp/20010401/practice.html

The American Academy of Family Physicians   NIH Consensus Statement on Phenylketonuria

USA

http://www.americanbaby.com/ab/CDA/pediatric_health_center_detail/0,1763,10942-0-375,00.html?s=375

Pediatric Health Center

USA

http://www.lef.org/prod_hp/abstracts/php-ab064.html#3

PHENYLALANINE

USA

http://www.personalmd.com/news/n0104112138.shtml

PersonalMD:Restricted diet advised for pregnant women with PKU

USA

http://www.ernestina.org/ship/logbook2001/lg070901.html

PKU TEEN Challenge Ernestina Logbook Page
The Massachusetts Schooner ERNESTINA

USA

http://www.nucdf.org/science_magazineNBS.htm

The American Association for the Advancement of Science

Fast Technology Drives New World of Newborn Screening Eliot Marshall

USA

http://www.geocities.com/silverwaves44/Research/PKU/PKU.htm

The Genetics of PKU

USA

http://www.nih.gov/news/pr/oct2000/omar-18.htm

NIH: NATIONAL INSTITUTES OF HEALTH Consensus Panel Recommends Comprehensive Approach to Life Long Care for PKU

USA

http://www.merck.com/pubs/mmanual/section19/chapter269/269i.htm

Anomalies of amino acid metabolism

USA

http://www.wadsworth.org/newborn/

http://www.wadsworth.org/newborn/order.htm

The concept of newborn screening began in Buffalo, New York in 1960 with the work of Robert Guthrie       8,500 pku in USA

USA

http://www.thearc.org/faqs/pku.html

The Arc National Headquarters 1010 Wayne Ave. Suite 650
Silver Spring, MD 20910
  info@thearc.org

USA

http://www.hmcnet.harvard.edu/psych/redbook/89.htm

STUDY OF EXPANDED NEWBORN SCREENING

USA

http://www.people-inc.org/museum/

The Museum of Disability History

USA

http://www.genetests.org/

Genes Tests University of Washington, Seattle, Usa

USA

http://www2.et.byu.edu:8080/~cjs44/history.htm#pku

Website de Clayton Simmons père de John PKU né le 15 Décembre 2002

USA - VERMONT

http://www.geocities.com/cortney_and_pku/

CORTNEY’S PKU WEBSITE

USA - VERMONT

http://jpc32.frostyhost.com/

JARROD’S PKU WEBSITE

USA

http://www20.brinkster.com/thepkuplace/

http://www20.brinkster.com/thepkuplace/familycamp2004.html

THE PKU PLACE    alisondietrich@hotmail.com

USA

http://gladstone.uoregon.edu/~abedney/

SITE D’ANNE BEDNEY (Oregon) mère d’Evan Michael pku

USA

http://groups.msn.com/pkuyouthandyoungadults

Missy Badalyan 28ans pku  Group Manager

USA

http://www.kings-realm.net/hand/BirthStories/MichaelColeman.htm

Michael Allen Coleman

USA

http://www20.brinkster.com/thepkuplace/

Ali Dietrich 19-year-old w/ PKU  Walla Walla, WA
alisondietrich@hotmail.com

USA

http://www.pkuworldlink.org/

SITE DE SARAH FOSTER PKU 33 ANS

USA

http://www.formydiet.com/

http://www.formydiet.com/MessageBoard/ultimatebb.cgi

Site de Laura and Amram (Ami) Assayag, la tante et l’oncle de 2 garçons PKU

USA

http://www.tuxesfortia.com

Adresse(s) d'email :  alisonpiziali@HOTMAIL.COM

 

 

 

 

 

 

 

 

 

 

 

 
EUROPE  EUROPA

EUROPE EUROPA

http://www.espku.org/

ESPKU

EUROPE EUROPA

http://www.pinocchio.org/

Le site  recense les possibilités d'accompagnement, d'éducation spéciale et de réadaptation pour enfants avec un handicap en Europe et dans le monde

Monde

http://www.isns-neoscreening.org/

International Society  of Newborn Screening Président: Prof. JL Dhondt (France)

Allemagne Cologne

www.br-schroeder.de

WebSite de Birgit Schröeder-Schumacher, PCU de Cologne

ALLEMAGNE

http://www.dig-pku.de/

Association DIG-PKU EV Vice Présidente Dr Miriam Hein pcu et pédiatre

ALLEMAGNE

http://www.phenylketonurie.de/

http://www.phenylketonuria.com/gaestebuch/

WebSite de Tino Ringer père de Stefan PCU

ALLEMAGNE

http://www.phenylketonurie.de/forum/

PKU-FORUM

ALLEMAGNE

http://www.pku.de/

WEBSITE PCU ALLEMAND

ALLEMAGNE

http://www.forumromanum.de/member/forum/forum.cgi?USER=user_1331

FORUM PKU

ALLEMAGNE

http://www.wischnewski-online.de/pku_ernaehrung.htm

Website du Dr Wischnewski Erik

ALLEMAGNE

http://home.t-online.de/home/diehl.hans-juergen/#

Boa et Bergmolch Website PCU de Ruth Fisch et Hans-Jüergen Waage

ALLEMAGNE

http://www.pku-info.org/index.php?language=deutsch

Joerg et Steffi Hohn de Lengfeld/Otzberg Parents d’Ismail 6ans Pcu

ALLEMAGNE

http://www.pkuworld.de/

Website de Ralph et Martina Slany      kontakt Contact : info@pku-world.de

ALLEMAGNE

http://www.pku.unet.de/

Une aide précieuse pour tous les PCU

ALLEMAGNE

http://www.pku-verein-duesseldorf.de/

PKU Verein Düsseldorf e.V. Zum Nordkanal 7 47929 Grefrath E-Mail: norpe@web.de

ALLEMAGNE

http://www.tcc-hagedorn.de/

Site perso de Tobias Hagedorn d’ENGER, secrétaire de l’ESPKU

ALLEMAGNE

http://www.pkuweb.de/

Website des parents d’Elena, pcu, site réalisée par Gerhard Schneider, son oncle

ALLEMAGNE

http://link.springer.de/link/service/journals/00431/bibs/0159014/0159s074.htm

European Journal of Pediatrics Development of intelligence in early treated phenylketonuria by Peter Burgard

ALLEMAGNE

http://www.wischnewski-online.de/pku_ernaehrung.htm

http://www.wischnewski-online.de/home.htm

Dr. Erik Wischnewski  Heinrich-Heine-Weg 13  D-24568 Kaltenkirchen

ALLEMAGNE

http://pku.mainchat.de/

PKU CHAT : Herzlich Willkommen im PKU-World-Chat !

ARMENIE

http://magic.am/sos/

Susanna Hovhannissian live in Yerevan and is mother of little boy pku 3years old

AUTRICHE

http://home.pages.at/oegast/

Association PCU autrichienne : OEGAST

BELGIQUE Belgium

http://www.geocities.com/pharma38/

Association Pcu BOLERO du centre Pinocchio dirigé par le Pr François à Liège

BELGIQUE Belgium

http://www.cedores.be/telesoc/DI03189.htm

ASSOCIATION NATIONALE D’AIDE AUX PHENYLCETONURIQUES - ANAP
RUE DE L'AISETTE, 69 - 7080 EUGIES Tél: 065/66.53.92

BELGIQUE Belgium

http://www.boks.be/

Asbl : Association Belge enfants atteints d'une maladie métabolique

regroupe plus de 51 PCU

BELGIQUE Belgium

http://users.swing.be/pierre.foulart/obj_cv.htm#phenylathon

Le PHENYLATHON organisé par l’Olympique Blaugies Jogging de Pierre Foulart

Un chèque de 795.654 FB a été remis à l’Association Nationale d'Aide aux Phénylcétonuriques

BELGIQUE Belgium

http://users.skynet.be/fa388694/

http://www.pcu.be.tf/

http://users.skynet.be/fa388694/Admin/Reglements/Objectifs_2004.pdf

 

Site PCU de Julien Beeckman

BULGARIE Bulgaria

http://ivo.medfac.acad.bg/lmp/Masscreen.htm

Mass neonatal screening in Bulgaria

CROATIE

http://www.fenilketonurija.hr/

Domagoj Štajduhar UDRUGE ZA POMOĆ OBOLJELIMA OD FENILKETONURIJE (PKU)

CROATIE

http://www.mzt.hr/projekti9095/3/01/090/proj_h.htm

NASLJEDNE METABOLIÈKE BOLESTI DJECE

CROATIE

http://www.pharma.hr/bmb/predavanja/dusik/index.htm

DIAPORAMA METABOLIZAM DUŠIKOVIH SPOJEVA

DANEMARK

http://www.pku.dk/

DENMARK PKU foreningen for Danmark

DANEMARK

http://asp.smscom.dk/pku.dk/right.asp

PKU foreningen for Danmark

DANEMARK

http://www.netdoktor.dk/sygdomme/Fakta/pku.htm

Føllings sygdom (Fenylketonuri)Af Torben Bjerregaard Larsen, læge

DANEMARK

http://www.nilab.com/dk/main.html

Compagnie Nilab A/S de Stein H. Jensen à Middelfart au Danemark qui vend le PREKUNIL

DANEMARK

http://www.csh.dk/

CENTER FOR SMÄ HANDICAPGRUPPER csh@csh.dk

Espagne Andalousie

http://www.iespana.es/fenilcetonuriapkujm/

ASOCIACIÓN PKU Y OTM DE ANDALUCÍA

ESPAGNE  SPAIN

http://www.eintec.es/faepku/page3.html

F.A.E. PKU y O.T.M

ESPAGNE  SPAIN

http://www.euskadipkuotm.org/

Euskadiko PKU Elkartea y otros errores del metabolismo

ESPAGNE  SPAIN

http://www.hsjdbcn.org/castm444_2_22.html

Laboratorio de metabolopatías del Hospital Sant Joan de Déu

ESPAGNE  SPAIN

http://www.ae3com.org/qsom.htm

A.E.C.O.M : Asociación Española para el Estudio de los Errores Congénitos del Metabolismo Presidente: Guillem Pintos Morell

ESPAGNE  SPAIN

http://www.karlosnet.com/General/pku.shtml

Recetas preparadas por Karlos Arguiñano y cedidas por la Asociación Euskadi P.K.U.

 

FRANCE

 

FRANCE

http://www.afdphe.asso.fr

http://perso.wanadoo.fr/afdphe/

http://www.bmlweb.org/depistage_neonat.html

http://perso.wanadoo.fr/afdphe/french/depeche_fr.htm

http://www.cliniquecotteel.worldnet.fr/afdphe.htm

http://www.john-libbey-eurotext.fr/articles/mtp/4/6/399-400/

AFDPHE

Association Française pour le Dépistage et la Prévention des Handicaps de l'Enfant

Président : Mr le Professeur Jean-Pierre Farriaux de Lille

Mr Farriaux a obtenu le Guthrie Award 2001

FRANCE

http://www.univ-st-etienne.fr/lbti/acomen/revue/2001/pdf4/sarles.pdf

J. SARLES   N. MAURIN   LE DEPISTAGE NEONATAL

 AREDEMAG  Hôpital d’Enafnts de la Timone à Marseille

FRANCE

http://www.cs-i.com/pediatrie/GPublic/allogen1.htm

ALLO-GENES ( un centre d'information sur les maladies génétiques ) dirigé par Marie-Louise Briard, professeur de génétique à l'hôpital Necker-Enfants Malades

FRANCE Chanonat

http://orphanet.infobiogen.fr/associations/JARDIN/JARDIN.html

Association les Enfants du Jardin

FRANCE

http://www.l-envol.org/fr/fr_01.html

Etablissement de santé type "Maison d'Enfants à Caractère Sanitaire" relevant de la discipline des soins de suite / organise des camps et a déjà accueilli des enfants PCU

FRANCE Rennes

http://www.med.univ-rennes1.fr/etud/pediatrie/phenylcetonurie.htm

Les maladies héréditaires du métabolisme par B. Le Marec

FRANCE Rennes

http://www.med.univ-rennes1.fr/etud/pediatrie/erreurs-metabolisme.htm

Erreurs innées du métabolisme par B. Le Marec

FRANCE

http://www-timc.imag.fr/Olivier.Cohen/college/Enseignement/genformclin/depistneonat.html

Le dépistage néonatal  Cyril Goizet, Didier Lacombe

FRANCE Paris

http://orphanet.infobiogen.fr/data/patho/FR/fr-PKU.html

http://www.necker.fr/irnem/Unites%202001/01fedped.htm

Embryopathie phénylcétonurique par le  Docteur Véronique Abadie

FRANCE

http://www.pediatric-neurology-paris.org/CongresSENP/html/maladies_metaboliques_communic.html#Phenylcetonurie

Le tremblement dans la phénylcétonurie et son rapport éventuel avec des mécanismes antioxydants

FRANCE

http://www.cpam74.fr/552.html

LES  AFFECTIONS DE LONGUE DUREE (ALD)

FRANCE

http://www.orpha.net/

ORPHANET est un serveur d'information sur les maladies rares et les médicaments orphelins en libre accès pour tous publics

FRANCE

http://www.inrp.fr/Acces/biotic/gpe/dossiers/phenylcetonurie/

Le phénotype phénylcétonurique

FRANCE

http://www.handroit.com/     http://www.handroit.com/cadre.htm

http://www.handroit.com/cdes.htm        http://www.handitec.com/index.asp

Informations sur tous les droits et allocations des handicapés

AES  Congé de présence parentale

Infos sur la bande des 4 :

SECURITE SOCIALE   CONSEIL GENERAL    CDES   COTOREP

FRANCE

http://phenyl.free.fr/

slebrin@hotmail.com

HONGRIE

http://users.freestart.hu/hupku/

The Hungarian Society for PKU

ITALIE  ITALY

http://www.apmmc.it/

Associazione Prevenzione Malattie Metaboliche Congenite

ITALIE ITALY

http://space.tin.it/associazioni/amarzent/

Cometa A.S.M.M.E. : Associazione Studio Malattie Metaboliche Ereditarie  Via Vittorio Veneto, 12 a - 35020 Legnaro (PD)

MOLDAVIA

http://space.tin.it/associazioni/amarzent/Moldavia.html

Giovanni è uno splendido bambino di 12 anni che vive in Moldavia
Giovanni è affetto da una malattia metabolica ereditaria: la fenilchetonuria (PKU)

NORVEGE

http://home.no.net/pku2002/

DEN NORSKE PKU-FORENING

PAYS-BAS

http://www.npkuv.nl/

NPKUV Nederlandse Pku-vereniging

PAYS-BAS

http://www.wtb.tue.nl/woc/ptc/vanesch/pku/

PKU Online du Docteur B.P.M. van Esch d’Eindhoven

POLOGNE

http://republika.pl/pku_mazowsze/

PKU MAZOWSZE

POLOGNE - LODZ

http://www.pspkuizp.org/

Polskie Stowarzyszenie Chorych na Fenyloketonurie i Zaburzenia Pokrewne

POLOGNE

http://www.pku.pl/

Stowarzyszenie Pomocy Osobom Chorym na Fenyloketonurie Janusz Gierliński

PORTUGAL

http://www.igm.min-saude.pt/

Instituto de Genética Médica (IGM) Dr. Jacinto de Magalhães

Royaume-Uni  Ecosse

http://www.grandboys.btinternet.co.uk/index.htm  http://mysite.freeserve.com/grandboys/index.htm

Robert Kelly Bannockburn

ROYAUME-UNI

http://www.nspku.org/

Association PCU Britannique : NSPKU

ROYAUME-UNI

http://www.fesoc.com/pku/

Infos sur PCU et régime PCU :  webmaster@fesoc.com

Royaume-Uni  England

http://members.tripod.com/jake.kidson/

Jake Patrick Kidson Home Page born 24/7/1992

Royaume-Uni

http://www.willroberts.com/

Will Roberts : Leicester University

Royaume-Uni

http://www.bryanpearce.co.uk/biography/index.html#top

Bryan Pearce: was born in St Ives, Cornwall in 1929, a sufferer of the then unknown condition Phenylketonuria...

Royaume-Uni

http://www.ssiem.org.uk/ssiemj.html

SOCIETY FOR THE STUDY OF INBORN ERRORS OF METABOLISM

Royaume-Uni

http://pub44.ezboard.com/bnspkuchatforum

NSPKU CHAT FORUM

Royaume-Uni

http://www.climb.org.uk/

Children Living with Inherited Metabolic Diseases

Royaume-Uni

http://www.pkuexchange.co.uk/contactus.php

Website de Ross Taylor 25ans, PKU : contact@pkuexchange.co.uk

RUSSIE

http://www.geocities.com/tcbpku/

Global Pku Portal de Maria Jouikova PCU 20ans Université Toronto Ontario

RUSSIE

http://pku.nm.ru/

Masha pku

SLOVENIE

http://www.pku-slovenia.com/

Assoc.Pcu Slovène  Secrétaire : Natalija STOSICKI

SUEDE  SWEDEN

http://www.sos.se/

Socialstyrelsen

SUEDE

http://www6.goteborg.se/agrenska/nyhetsbrev/alla_utgavor_files/FenylketonuriPKU%202002.pdf

Fenylketonuri, PKU Nyhetsbrev 198

SUISSE alémanique

http://www.onet.ch/pku/

Association CHIP   Peter Schaer

SUISSE Romande

http://www.pcu.ch/

Site de Béatrice Douvry     Suisse Romande

SUISSE Romande

http://tecfa.unige.ch/tecfa/teaching/UVLibre/0001/bin26/monweb/welcome.htm

http://tecfa.unige.ch/tecfa/teaching/UVLibre/0001/bin26/monweb/phenyl.htm

le site de la Belle Toile

SUISSE Romande

http://www.genoscope.cns.fr/externe/Francais/corps_francais.html

http://www.genoscope.cns.fr/externe/Francais/Questions/

GENOSCOPE

SUISSE Romande

http://www.pediatrics.ch/Frames.html

13 Septembre 2003: Journée PCU au CHUV

SUISSE

http://tecfa.unige.ch/~lombardf/calvin/TM02/phenycetonurie/nathalie_tafer.html

TRAVAIL DE MATURITE Collège Calvin septembre 2002 La Phénylcétonurie et ses Traitements actuels ou  à venir de Natahlie Tafer

TCHEQUIE

http://www.espku.cz/

Centrum PKU Vinohrady

TURQUIE

http://www.ksm.gov.tr/fku.htm

Gouvernement turc

TURQUIE

http://www.pkuturk.com/

Mesut TORAMAN                 bilgi@pkuturk.com

TURQUIE

http://www.pku.in.com.tr/

THE TURKISH SOCIETY FOR SCREENING AND TREATMENT OF PKU

 Hacettepe Üniversitesi doktorlarının ve Fenilketonüri derneğinin internet sayfası.

TURQUIE

http://www.geocities.com/marmaraeczanesi/pku.html

http://www.geocities.com/marmaraeczanesi/

MARMARA ECZANESI

TURQUIE

http://www.tusdata.com/aile/fenilket.htm

Fenilketonuri Hastalığı

UKRAINE

http://ibis-birthdefects.org/start/pkuparen.htm

http://ibis-birthdefects.org/start/pkumeet.htm

The Ukrainian Organization of Parents of PKU-affected Children

YOUGOSLAVIE

http://www.emedicine.com/DERM/topic712.htm

Phenylketonuria, Article de Djordjije Karadaglic, MD, DSc, President de Yugoslav Association of Dermatology and Venereology

 

 

 

OCEANIE   OCEANIA

Australia Sydney

http://www.pkunsw.org.au/

http://www.smh.com.au/articles/2003/04/24/1050777344426.html

The PKU Association of NSW Inc. Présidente: Debbie Colyer Pcu 45 ans

Australia Queensland

http://www.pkuliving.com

http://www.ozemedia.com/results/newsletters/issue240.htm#8

Kate Wiley CPKU 19ans et son père Phil Wiley  kate@ozemedia.com

AUSTRALIA

http://www.pku.8m.com/

http://pku.ozgm.com/

Pku News for South Aussies  Australasian Society

 for Inborn Errors of Metabolism Lyn Harvey

AUSTRALIA

http://pku.come.to/

Shane Couch   http://shanecouch.tripod.com/

AUSTRALIA

http://www.cyh.com/cyh/parentopics/usr_srch2.stm?topic_id=292&precis=null

Parenting Child Health

AUSTRALIA

http://turquoise.dyn.dhs.org/mdda/contributions/article.asp?article=jean-claude_content

Jean-Claude Arruo, PCU, 18 ans, champion de Judo

AUSTRALIA

http://turquoise.dyn.dhs.org/mdda/

MDDA : The Metabolic Dietary Disorders Association  Kerri Carboon et Rachael Sharman

AUSTRALIA

http://www.pkuadults.com/clinics/australia.htm

Website Administrator : Andrew McLean, 32 year old PKU, canada

AUSTRALIA

http://www.ncbi.nlm.nih.gov/

http://www.ncbi.nlm.nih.gov/About/

NCBI

AUSTRALIA

http://www.biotechnology.gov.au/biotechnologyOnline/human/gene_testing/h_gene_screen.htm

in Australia every newborn child is screened for phenylketonuria (PKU)

AUSTRALIA

http://www.disability.vic.gov.au/dsonline/dsarticles.nsf/(Pages)/Phenylketonuria_(PKU)?OpenDocument

http://www.disability.vic.gov.au/dsonline/dssite.nsf?open

http://www.disability.vic.gov.au/dsonline/dsarticles.nsf/pages/Newborn_screening?OpenDocument

Disability Online

AUSTRALIA

http://ariel.its.unimelb.edu.au/~cotton/projects.htm#PAH%20project

http://ariel.ucs.unimelb.edu.au/~cotton/mrc.htm

Mutation Research Centre                Phenylalanine Hydroxylase (PAH)

AUSTRALIA

http://www.cyh.com/cyh/parentopics/usr_srch2.stm?topic_id=292&precis=null

NEONATAL SCREENING TEST

Nouvelle-Zélande

http://www.hdc.org.nz/printer/publications/articles/GuthrieTestsandinformedco.html

http://www.hdc.org.nz

 

Nouvelle-Zélande

http://www.cdc.gov/nceh/globalhealth/GHAR/asia.htm#New%20Zealand

 

Nouvelle-Zélande

http://www.sah.co.nz/SAH/AucklandSouthHealth/our_community.htm

http://www.sah.co.nz/SAH/AucklandSouthHealth/our_community.htm#Newborn%20screening

Page Pcu

 

 

 
AFRICA- AFRIQUE        ASIA -ASIE      PAYS ARABES- ARAB COUNTRIES
AFRIQUE AFRICA

AFRIQUE DU SUD

http://www.phealth.co.za/Laymans/D000/text/d0201el.htm

PAGE INFOS PCU

EGYPTE

http://ambassadors.net/archives/issue10/selected_studies.htm

Dr. Esmat Mansour, Dr. Ibrahim El-Nekhaly
ASIE ASIA

ARABIE SAOUDITE

Saudi Arabia  Riyadh

http://rc.kfshrc.edu.sa/BMR/sections/msl/

Metabolic Screening Laboratory King Faisal Specialist Hospital & Research Centre

COREE  KOREA

http://www.medic.kumamoto-u.ac.jp/dept/pediat/jshg/46-tokubetu.htm

The Korean Society of Medical Genetics  Président: Je Ho Lee

ISRAEL

http://www.chiroweb.com/archives/20/19/03.html

PKU and Noah's Ark   by Rabbi Shmuel Brody,DC

JAPON JAPAN

http://lfw.org/shodouka/http://www2.kosodachi.ne.jp/~kn0013313/

PERSONAL WEBSITE PKU JAPANESE

JAPON JAPAN

http://lfw.org/shodouka/http://www.eiyo.ac.jp/english/research/index_s020.html

http://lfw.org/shodouka/http://www.eiyo.ac.jp/english/e_index.html

Kagawa Institute of Nutrition Research activities of child nutrition (pku) Prof. Kikumaro Aoki   Prof. Owada   Kaoru Hayasi

JAPON JAPAN

http://hope.shiga-med.ac.jp/pediat/endocrine/PKU.htm

ohya@belle.shiga-med.ac.jp

JAPON JAPAN

http://lfw.org/shodouka/http://www.jaog.or.jp/JAPANESE/MEMBERS/TANPA/H14/020603.htm

Pku

JAPON JAPAN

http://lfw.org/shodouka/http://japan-pku.net

PHENYLKETONURIA JAPAN : japan9@japan-pku.net

JAPON JAPAN

http://www.vic-japan.gr.jp/vic/no93.htm

Vitamin and PKU

JAPON JAPAN

http://www.neoscreen.in.th/Nenglish/p05.htm

Development of Neonatal Screening in Japan  232 pku

JORDANIE

http://www.jordandrs.com/jordrs/indexorg.php3?action=printall

http://www.princehassan.gov.jo/main/sarvath2.htm

The Jordanian Charity Association for Phenylketonuria

Phone: 06-5332231

TAIWAN

http://www.vghtc.gov.tw:8082/ped/teaching/meta/pku/

Phenylketonuria in VGH-Taipei