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The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see history. The NSPKU actively promotes the care and treatment of PKUs and works closely with medical professionals in the UK. It organises conferences and others throughout the UK, publishes a wide range of publications (including food lists) for parents, PKUs and medical professionals. Events - the NSPKU organises conferences and study days. Local support groups also hold study days and other events. The NSPKU also sponsors medical research into PKU. The NSPKU is run by the Council of Management who are volunteers with PKU in their families. You can contact individual COM members by using the email addresses on our Contact page. |
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webmaster@nspku.org with
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