Sheila – Unlocking the Treatment for PKU – Orders outside the UK
In 1951, Sheila Jones was the first person in the world to be treated for Phenylketonuria (PKU) at Birmingham Children’s […]
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Book Launch! Sheila – Unlocking the treatment for PKU – UK orders
In 1951, Sheila Jones was the first person in the world to be treated for Phenylketonuria (PKU) at Birmingham Children’s […]
Food Labelling Survey
Imogen Hall, working with the NSPKU, needs your help. Imogen is a dietetic student at Birmingham City University. She is […]
Watch the NHS England presentation about sapropterin (Kuvan)
NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week. We have received the following message […]
PKU Baking: overcoming guilt or fear of failure…. a blog by Clair
PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]
Cooking for myself… a break from Crisps and Soup! A blog from Clair
Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]
NSPKU mark International PKU Day
On International PKU Day, 28 June, we hosted an all day “telethon” of events to bring the community together and […]
Guides to help you shop for the PKU diet
Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]
Low Protein Sauces
Low Protein Sauces Download Here: Low Protein Sauces
Low Protein Snacks
Low Protein Snacks Download here: Snacks 2020