Watch the NHS England presentation about sapropterin (Kuvan)
NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week. We have received the following message […]
Blog
PKU Baking: overcoming guilt or fear of failure…. a blog by Clair
PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]
Cooking for myself… a break from Crisps and Soup! A blog from Clair
Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]
NSPKU mark International PKU Day
On International PKU Day, 28 June, we hosted an all day “telethon” of events to bring the community together and […]
Guides to help you shop for the PKU diet
Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of things […]
Low Protein Sauces
Low Protein Sauces Download Here: Low Protein Sauces
Low Protein Snacks
Low Protein Snacks Download here: Snacks 2020
Taking Protein Substitutes – Clair
Taking Protein Substitutes: Is there an Emotional wall? When you start to learn how to manage your own PKU […]
Dietary Information for the Treatment of Phenylketonuria
The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]
Branded Exchange Free Food List
Click here to down load the list: NSPKU_Branded_Exchange-free_A4_5 This is a list giving examples of foods in 20 […]