Questions and Answers about the NICE decision about Kuvan
Who is NICE and what are they doing? NICE is the “National Institute for Health and Care Excellence”. It […]
Helpline: 030 3040 1090
Who is NICE and what are they doing? NICE is the “National Institute for Health and Care Excellence”. It […]
This survey is for children aged 18 or under (the carer/parent or guardian to complete) and the survey is about […]
This survey is for everyone with PKU aged over 18 (or their carers, parent or family member) and the survey […]
In 1951, Sheila Jones was the first person in the world to be treated for Phenylketonuria (PKU) at Birmingham Children’s […]
In 1951, Sheila Jones was the first person in the world to be treated for Phenylketonuria (PKU) at Birmingham Children’s […]
Imogen Hall, working with the NSPKU, needs your help. Imogen is a dietetic student at Birmingham City University. She is […]
NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week. We have received the following message […]
PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]
Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]
On International PKU Day, 28 June, we hosted an all day “telethon” of events to bring the community together and […]