New Guide to Ice Lollies, sorbets and ice creams
We have posted a handy new colour guide to ice lollies, sorbet and ice cream on the website, which has […]
Blog
Polly writes on “PKU in the Lockdown”
PKU & Lockdown Greetings fellow travellers on the PKU road. My name is Polly and I write about my PKU […]
Respond to NHS England consultation for Kuvan for PKU
NHS England has launched a consultation on a draft policy to fund Kuvan (sapropterin) for people with PKU in England. […]
Survey on impact of aspartame on people with PKU
Ella Newbould, working with the NSPKU, needs your help. Ella is a dietetic student at Birmingham City University. She is studying how often aspartame […]
New guide to PKU Food Exchanges
This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://www.nspku.org/download/food-exchanges-list/
Low protein baking guide
Baking is a fun activity for both adults and children. Have a look at this full colour guide to baking […]
Help with research about children’s experience of school food for PKU
Hannah Jones, working with the NSPKU, needs your help. Hannah is a dietetic student at Birmingham City University. She is […]
Baby food ideas
There is a great new guide to baby foods produced by the dietitians at Birmingham Children’s Hospital. Click this link: […]
NSPKU guidance re Coronavirus (COVID-19)
CONSIDERATIONS FOR PEOPLE LIVING WITH PKU People living with PKU may be concerned about the impact of Coronavirus (COVID-19) and […]
Talking PKU in Parliament
When we started our campaign for better care for PKU in Parliament we really wanted to get across the real […]