Watch the NHS England presentation about sapropterin (Kuvan)
NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week. We have received the following message […]
Survey on Eating out in Restaurants or Cafes
Grace Poole, working with the NSPKU, needs your help. Grace is a dietetic student at Birmingham City University. She is […]
Survey on impact of aspartame on people with PKU
Ella Newbould, working with the NSPKU, needs your help. Ella is a dietetic student at Birmingham City University. She is studying how often aspartame […]
Talking PKU in Parliament
When we started our campaign for better care for PKU in Parliament we really wanted to get across the real […]
Liam talks about his career ambitions and PKU advocacy
Hi, I am Liam and I am 20 years old and I have PKU, I live in St. Helens […]