Skip to content

Helpline: 030 3040 1090

  • Facebook
  • Twitter
  • Instagrame
NSPKU

NSPKU

MENUMENU
  • Home
  • About PKU
  • Living With PKU
        • Throughout Life


        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy
        • Advice and Guidance


        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ's
        • Treatments


        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU
        • Other information


        • Useful Documents
        • Useful Links
  • Get involved
    • Join NSPKU
    • NSPKU Conference
    • Future events
    • Campaign
    • Support us
  • Research
    • Disorder Management
    • New Treatments
    • Diet
    • Guidelines
    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
  • News
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Category: Children

Food Labelling Survey

21/08/2020 Suzanne Ford

Imogen Hall, working with the NSPKU, needs your help. Imogen is a dietetic student at Birmingham City University. She is […]

Adult, Children, Diet, Young people

NSPKU mark International PKU Day

12/06/202030/06/2020 kate learoyd

On International PKU Day, 28 June, we hosted an all day “telethon” of events to bring the community together and […]

Adult, Children, Events, Fundraising, Young people

Guides to help you shop for the PKU diet

29/05/202028/08/2020 kate learoyd

  Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]

Adult, Children, Diet, Young people

Low Protein Sauces

22/05/202027/07/2020 Suzanne Ford

              Low Protein Sauces Download Here:  Low Protein Sauces      

Adult, Children, Diet, Young people

Low Protein Snacks

22/05/202027/07/2020 Suzanne Ford

Low Protein Snacks Download here:  Snacks 2020  

Adult, Children, Diet, Young people

Dietary Information for the Treatment of Phenylketonuria

05/05/202006/05/2020 Suzanne Ford

The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]

Adult, Children, Diet, Young people

School Meals – the PKU Diet at School

01/05/2020 Suzanne Ford

A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download:  School_Meals A5 Single  

Children, Diet

Survey on Eating out in Restaurants or Cafes

30/04/202030/04/2020 Suzanne Ford

Grace Poole, working with the NSPKU, needs your help. Grace is a dietetic student at Birmingham City University. She is […]

Adult, Campaign, Children, Diet, Young people
Lollies

New Guide to Ice Lollies, sorbets and ice creams

08/04/202027/07/2020 kate learoyd

We have posted a handy new colour guide to ice lollies, sorbet and ice cream on the website, which has […]

Children, Diet

New guide to PKU Food Exchanges

31/03/202008/04/2020 kate learoyd

This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://www.nspku.org/download/food-exchanges-list/

Adult, Children, Diet, Young people

Posts navigation

Older posts

Recent Posts

  • Sheila – Unlocking the Treatment for PKU – Orders outside the UK
  • Book Launch! Sheila – Unlocking the treatment for PKU – UK orders
  • Food Labelling Survey
  • Watch the NHS England presentation about sapropterin (Kuvan)
  • PKU Baking: overcoming guilt or fear of failure…. a blog by Clair

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

    You can also use our documents library to access lots of important information

    Copyright © 2021 NSPKU Website design by Stoke-on-Trent charity Vast.

    Privacy Policy | Terms & Conditions | Cookie Notification

    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED
    is a charity registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )

    [ Placeholder content for popup link ] WordPress Download Manager - Best Download Management Plugin

    We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.Ok