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Category: Diet

NSPKU Survey for children with PKU aged 18 or under (for carer/parent to complete)

10/02/202110/02/2021 Suzanne Ford

This survey is for children aged 18 or under (the carer/parent or guardian to complete) and the survey is about […]

Children, Diet, Uncategorized, Young people

NSPKU Survey for people with PKU aged over 18

10/02/202110/02/2021 Suzanne Ford

This survey is for everyone with PKU aged over 18 (or their carers, parent or family member) and the survey […]

Adult, Diet, Uncategorized, Young people

Food Labelling Survey

21/08/2020 Suzanne Ford

Imogen Hall, working with the NSPKU, needs your help. Imogen is a dietetic student at Birmingham City University. She is […]

Adult, Children, Diet, Young people

PKU Baking: overcoming guilt or fear of failure…. a blog by Clair

22/07/202022/07/2020 Suzanne Ford

PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]

Adult, Diet, Young people

Cooking for myself… a break from Crisps and Soup! A blog from Clair

15/07/202015/07/2020 Suzanne Ford

Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]

Adult, Diet, Young people

Guides to help you shop for the PKU diet

29/05/202028/08/2020 kate learoyd

  Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]

Adult, Children, Diet, Young people

Low Protein Sauces

22/05/202027/07/2020 Suzanne Ford

              Low Protein Sauces Download Here:  Low Protein Sauces      

Adult, Children, Diet, Young people

Low Protein Snacks

22/05/202027/07/2020 Suzanne Ford

Low Protein Snacks Download here:  Snacks 2020  

Adult, Children, Diet, Young people

Taking Protein Substitutes – Clair

07/05/202007/05/2020 Suzanne Ford

Taking Protein Substitutes:    Is there an Emotional wall? When you start to learn how to manage your own PKU […]

Adult, Diet, Young people

Dietary Information for the Treatment of Phenylketonuria

05/05/202006/05/2020 Suzanne Ford

The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]

Adult, Children, Diet, Young people

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Recent Posts

  • Questions and Answers about the NICE decision about Kuvan
  • NSPKU Survey for children with PKU aged 18 or under (for carer/parent to complete)
  • NSPKU Survey for people with PKU aged over 18
  • Sheila – Unlocking the Treatment for PKU – Orders outside the UK
  • Book Launch! Sheila – Unlocking the treatment for PKU – UK orders

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