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Category: Diet

Branded Exchange Free Food List

05/05/202005/05/2020 Suzanne Ford

Click here to down load the list:  NSPKU_Branded_Exchange-free_A4_5     This is a list giving examples of foods in 20 […]

Diet, Uncategorized

School Meals – the PKU Diet at School

01/05/2020 Suzanne Ford

A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download:  School_Meals A5 Single  

Children, Diet

Survey on Eating out in Restaurants or Cafes

30/04/202030/04/2020 Suzanne Ford

Grace Poole, working with the NSPKU, needs your help. Grace is a dietetic student at Birmingham City University. She is […]

Adult, Campaign, Children, Diet, Young people
Lollies

New Guide to Ice Lollies, sorbets and ice creams

08/04/202027/07/2020 kate learoyd

We have posted a handy new colour guide to ice lollies, sorbet and ice cream on the website, which has […]

Children, Diet

Polly writes on “PKU in the Lockdown”

03/04/202003/04/2020 kate learoyd

PKU & Lockdown Greetings fellow travellers on the PKU road. My name is Polly and I write about my PKU […]

Adult, Diet

New guide to PKU Food Exchanges

31/03/202008/04/2020 kate learoyd

This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://www.nspku.org/download/food-exchanges-list/

Adult, Children, Diet, Young people

Low protein baking guide

27/03/202027/07/2020 kate learoyd

Baking is a fun activity for both adults and children.  Have a look at this full colour guide to baking […]

Children, Diet

Help with research about children’s experience of school food for PKU

27/03/202027/03/2020 kate learoyd

Hannah Jones, working with the NSPKU, needs your help. Hannah is a dietetic student at Birmingham City University. She is […]

Children, Diet
NHS

NSPKU guidance re Coronavirus (COVID-19)

13/03/202027/03/2020 kate learoyd

CONSIDERATIONS FOR PEOPLE LIVING WITH PKU People living with PKU may be concerned about the impact of Coronavirus (COVID-19) and […]

Adult, Children, Diet, Uncategorized

Talking PKU in Parliament

17/02/202017/02/2020 kate learoyd

When we started our campaign for better care for PKU in Parliament we really wanted to get across the real […]

Campaign, Diet

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Newer posts

Recent Posts

  • Helping adults with PKU respond to the NICE consultation on Kuvan
  • Questions and Answers about the NICE decision about Kuvan
  • NSPKU Survey for children with PKU aged 18 or under (for carer/parent to complete)
  • NSPKU Survey for people with PKU aged over 18
  • Sheila – Unlocking the Treatment for PKU – Orders outside the UK

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