Skip to content

Helpline: 030 3040 1090

  • Facebook
  • Twitter
  • Instagrame
NSPKU

NSPKU

MENUMENU
  • Home
  • About PKU
  • Living With PKU
        • Throughout Life


        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy
        • Advice and Guidance


        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ's
        • Treatments


        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU
        • Other information


        • Useful Documents
        • Useful Links
  • Get involved
    • Join NSPKU
    • NSPKU Conference
    • Future events
    • Campaign
    • Support us
  • Research
    • Disorder Management
    • New Treatments
    • Diet
    • Guidelines
    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
  • News
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Category: Uncategorized

Sheila – Unlocking the Treatment for PKU – Orders outside the UK

13/10/2020 Suzanne Ford

In 1951, Sheila Jones was the first person in the world to be treated for Phenylketonuria (PKU) at Birmingham Children’s […]

Uncategorized

Book Launch! Sheila – Unlocking the treatment for PKU – UK orders

12/10/2020 Suzanne Ford

In 1951, Sheila Jones was the first person in the world to be treated for Phenylketonuria (PKU) at Birmingham Children’s […]

Uncategorized

Branded Exchange Free Food List

05/05/202005/05/2020 Suzanne Ford

Click here to down load the list:  NSPKU_Branded_Exchange-free_A4_5     This is a list giving examples of foods in 20 […]

Diet, Uncategorized

PKU Booklet – Temple Tool Survey

01/05/2020 Suzanne Ford

  We are a group of metabolic dietitians who have produced a guide to help you understand your child`s condition.  […]

Uncategorized
NHS

NSPKU guidance re Coronavirus (COVID-19)

13/03/202027/03/2020 kate learoyd

CONSIDERATIONS FOR PEOPLE LIVING WITH PKU People living with PKU may be concerned about the impact of Coronavirus (COVID-19) and […]

Adult, Children, Diet, Uncategorized

Recent Posts

  • Sheila – Unlocking the Treatment for PKU – Orders outside the UK
  • Book Launch! Sheila – Unlocking the treatment for PKU – UK orders
  • Food Labelling Survey
  • Watch the NHS England presentation about sapropterin (Kuvan)
  • PKU Baking: overcoming guilt or fear of failure…. a blog by Clair

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

    You can also use our documents library to access lots of important information

    Copyright © 2021 NSPKU Website design by Stoke-on-Trent charity Vast.

    Privacy Policy | Terms & Conditions | Cookie Notification

    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED
    is a charity registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )

    [ Placeholder content for popup link ] WordPress Download Manager - Best Download Management Plugin

    We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.Ok