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Category: Young people

Food Labelling Survey

21/08/2020 Suzanne Ford

Imogen Hall, working with the NSPKU, needs your help. Imogen is a dietetic student at Birmingham City University. She is […]

Adult, Children, Diet, Young people

PKU Baking: overcoming guilt or fear of failure…. a blog by Clair

22/07/202022/07/2020 Suzanne Ford

PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]

Adult, Diet, Young people

Cooking for myself… a break from Crisps and Soup! A blog from Clair

15/07/202015/07/2020 Suzanne Ford

Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]

Adult, Diet, Young people

NSPKU mark International PKU Day

12/06/202030/06/2020 kate learoyd

On International PKU Day, 28 June, we hosted an all day “telethon” of events to bring the community together and […]

Adult, Children, Events, Fundraising, Young people

Guides to help you shop for the PKU diet

29/05/202028/08/2020 kate learoyd

  Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]

Adult, Children, Diet, Young people

Low Protein Sauces

22/05/202027/07/2020 Suzanne Ford

              Low Protein Sauces Download Here:  Low Protein Sauces      

Adult, Children, Diet, Young people

Low Protein Snacks

22/05/202027/07/2020 Suzanne Ford

Low Protein Snacks Download here:  Snacks 2020  

Adult, Children, Diet, Young people

Taking Protein Substitutes – Clair

07/05/202007/05/2020 Suzanne Ford

Taking Protein Substitutes:    Is there an Emotional wall? When you start to learn how to manage your own PKU […]

Adult, Diet, Young people

Dietary Information for the Treatment of Phenylketonuria

05/05/202006/05/2020 Suzanne Ford

The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]

Adult, Children, Diet, Young people

Survey on Eating out in Restaurants or Cafes

30/04/202030/04/2020 Suzanne Ford

Grace Poole, working with the NSPKU, needs your help. Grace is a dietetic student at Birmingham City University. She is […]

Adult, Campaign, Children, Diet, Young people

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Recent Posts

  • Sheila – Unlocking the Treatment for PKU – Orders outside the UK
  • Book Launch! Sheila – Unlocking the treatment for PKU – UK orders
  • Food Labelling Survey
  • Watch the NHS England presentation about sapropterin (Kuvan)
  • PKU Baking: overcoming guilt or fear of failure…. a blog by Clair

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