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Category: Young people

Dietary Information for the Treatment of Phenylketonuria

05/05/202006/05/2020 Suzanne Ford

The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]

Adult, Children, Diet, Young people

Survey on Eating out in Restaurants or Cafes

30/04/202030/04/2020 Suzanne Ford

Grace Poole, working with the NSPKU, needs your help. Grace is a dietetic student at Birmingham City University. She is […]

Adult, Campaign, Children, Diet, Young people

New guide to PKU Food Exchanges

31/03/202008/04/2020 kate learoyd

This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://www.nspku.org/download/food-exchanges-list/

Adult, Children, Diet, Young people

Meet Chloe!

17/02/202022/02/2020 kate learoyd

Hey I’m Chloe! I’m twenty- two years old and I have PKU. I currently live with my parents and brother […]

Young people

Liam talks about his career ambitions and PKU advocacy

17/02/202021/02/2020 kate learoyd

  Hi, I am Liam and I am 20 years old and I have PKU, I live in St. Helens […]

Adult, Campaign, Young people

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Newer posts

Recent Posts

  • Questions and Answers about the NICE decision about Kuvan
  • NSPKU Survey for children with PKU aged 18 or under (for carer/parent to complete)
  • NSPKU Survey for people with PKU aged over 18
  • Sheila – Unlocking the Treatment for PKU – Orders outside the UK
  • Book Launch! Sheila – Unlocking the treatment for PKU – UK orders

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