The NSPKU is run by the Council of Management who are all volunteers unless stated otherwise.

For general enquiries, please contact the administrator at [email protected].

Individuals can be contacted by email addresses below:

Position Name Status Contact Details
Chair Eric Lange Parent of a person with PKU [email protected]
Secretary Iain Williamson PKU [email protected]
Hon Treasurer Andrew Thompson Parent of a person with PKU [email protected]
Publications Alison Green Professional, Paid 030 3040 1090
[email protected]
Conference Organiser Julie Cardy PKU [email protected]
Spring Draw Officer Chris Box Parent of a person with PKU [email protected]
Support group co-ordinator Duncan Noble-Nesbitt PKU [email protected]
Society Dietitian (Adults) Suzanne Ford Professional, Paid 020 3397 7494
[email protected]
Administrator Alison Green Professional, Paid [email protected]
Bookkeeper Margaret Butcher Professional, Paid 030 3040 1090
[email protected]
Young adults Iain Williamson PKU [email protected]
Editor News & Views Alison Green Parent of a person with PKU [email protected]
IT Coordinator Vacant Position Vacant [email protected]
Membership Margaret Butcher Professional, Paid 030 3040 1090
[email protected]
Campaign Manager Kate Learoyd Parent of a person with PKU [email protected]
ESPKU Rep Duncan Noble-Nesbitt PKU [email protected]