Skip to content

Helpline: 030 3040 1090

  • Facebook
  • Twitter
  • Instagrame
NSPKU

NSPKU

MENUMENU
  • Home
  • About PKU
  • Living With PKU

        • Throughout Life

        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy

        • Advice and Guidance

        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s

        • Treatments

        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU

        • Other information

        • Useful Documents
        • Useful Links
  • Get involved
    • Membership
    • NSPKU Conference
    • Future events
    • Campaign
    • Support us
  • Research
    • Disorder Management
    • New Treatments
    • Diet
    • Guidelines
    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
  • News
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Documents

  • All Documents
  • Adults
  • Awareness
  • Campaign
  • Childminders Nurseries and Schools
  • Children
  • Diagnosis
  • Dietary Info
  • Flyers for Fundraisers
  • Flyers Membership
  • For Parents
  • GP / Health Visitor
  • History
  • Maternal PKU
  • Parents
  • Pharmacists
  • Prescriptions
  • Starting Nursery and School
  • Travel
  • Treatments

Title Categories Update Date Download
Prescribing issues experienced by people living with PKU in the UK
1 19 downloads
 Survey 25/06/2020 Download
Reproductive experience of women living with PKU
1 18 downloads
 Survey, Woman 25/06/2020 Download
Living with PKU: Lessons from the PKU Community
1 36 downloads
 Survey 27/06/2020 Download

    For more information use our Contact page or helpline: 030 3040 1090

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

    You can also use our documents library to access lots of important information

    Copyright © 2021 NSPKU Website design by Stoke-on-Trent charity Vast.

    Privacy Policy | Terms & Conditions | Cookie Notification

    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED
    is a charity registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )