The carers of children with PKU have the crucial job of keeping their children safe and well through delivery of the PKU diet every day.

Useful dietary information:

The Dietary Information Booklet Dietary Information for the Treatment of Phenylketonuria

The "ready reckoner" for calculating exchanges Ready Reckoner

Guide to food exchanges (colour guide) Food Exchanges List 2020

Guide to branded free foods Branded Exchange Free Foods List

Guide to Sweets (colour) Low Protein Sweet Guide

Guide to Baby Foods (colour guide) Baby Food Guide

Guide to low protein baking ingredients (colour guide) Baking Guide

Ice Lollies, ice creams and sorbets (colour guide) Ice Lolly Guide 2020

Resources to support parents and carers:

Illustrated "passport" to help explain PKU to children or carers PKU passport

Useful guide to starting nursery A to Z of starting nursery

Other resources to be added soon:

  • Managing PKU treatment in your family life 
  • A step by step guide for parents and carers
  • Advice for grandparents, family carers and childminders

 


Latest News


Please Note
The dietary treatment for PKU varies for each person so all information produced by the NSPKU is for guidance only.  NSPKU publications should only be used in consultation with your own dietitian and/or doctor. Please see here for copyright details.